Coleman Family: My Bi-Pap

Tuesday, April 22, 2008

My Bi-Pap

Here is Jonas on his Bi-pap. We love and hate this thing.
We also received a sheep skin for Jonas to lay on. It is so comfy and hopefully it will stop break down from happening on his skin.

1 comments:

Morgan, Lindsay, Max and London said...: Does he have to wear that every night? You are an amazing family. Still, he looks so cute wearing it! Those eyes are beautiful!; April 23, 2008 at 2:37 PM

Post a Comment

Whit and I have been married for 9 years now. How time flies when you are having fun. We have the most precious baby boy named Jonas. He is in Heaven right now, waiting for us to return to him. We miss him every minute. We also have a little girl named Maggie, who has the same disease that her brother had. Time with her is limited as well, so we continue to do what we did with her brother...enjoy every minute! We are so blessed to have the most beautiful children and even though our time with them will be short, we know we will be with them again!

Jonas Mathie

Jonas was born on December 2, 2007. At six weeks old Jonas was diagnosed with a genetic disorder called SMA (spinal muscular atrophy). SMA Type I is a terminal genetic disease that results in loss of nerves in the spinal cord and weakness of the muscles connected with those nerves. Jonas beat the odds and lived with us for almost three years! He returned to heaven November 18, 2010. Every day we had with him here on earth was our heaven. We are better people because of Jonas and miss him everyday.