Coleman Family: Suction Away!

Wednesday, May 7, 2008

Suction Away!

I think I'll just hold on to this for you.

This is the cough assist machine. He does this every morning and every night. I think that he is finally starting to sort of get use to it. He likes to hold on while we suction him or cough him.

1 comments:

JonAli said...: Hey Whit and Lindsey! This is Jon Jackson. I had no idea you guys were blogging, its great to see pictures of Jonas. I'm glad to see that you guys are doing well!; May 19, 2008 at 2:28 PM

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Whit and I have been married for 9 years now. How time flies when you are having fun. We have the most precious baby boy named Jonas. He is in Heaven right now, waiting for us to return to him. We miss him every minute. We also have a little girl named Maggie, who has the same disease that her brother had. Time with her is limited as well, so we continue to do what we did with her brother...enjoy every minute! We are so blessed to have the most beautiful children and even though our time with them will be short, we know we will be with them again!

Jonas Mathie

Jonas was born on December 2, 2007. At six weeks old Jonas was diagnosed with a genetic disorder called SMA (spinal muscular atrophy). SMA Type I is a terminal genetic disease that results in loss of nerves in the spinal cord and weakness of the muscles connected with those nerves. Jonas beat the odds and lived with us for almost three years! He returned to heaven November 18, 2010. Every day we had with him here on earth was our heaven. We are better people because of Jonas and miss him everyday.