Coleman Family: Twice Daily Routine

Sunday, June 8, 2008

Twice Daily Routine

This is what we do every morning and every night.

Having a little fun before we begin.. get those fluids draining..

Cough assist machine...
Suck it out....

This is what doesn't make this fun at all...tears

1 comments:

Morgan, Lindsay, Max and London said...: I can't believe how blonde he looks! What a cutie! But those are some big tears! Poor little guy! We can't wait to get to spend some time with him, and soon! We miss him!; June 9, 2008 at 2:50 PM

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Whit and I have been married for 9 years now. How time flies when you are having fun. We have the most precious baby boy named Jonas. He is in Heaven right now, waiting for us to return to him. We miss him every minute. We also have a little girl named Maggie, who has the same disease that her brother had. Time with her is limited as well, so we continue to do what we did with her brother...enjoy every minute! We are so blessed to have the most beautiful children and even though our time with them will be short, we know we will be with them again!

Jonas Mathie

Jonas was born on December 2, 2007. At six weeks old Jonas was diagnosed with a genetic disorder called SMA (spinal muscular atrophy). SMA Type I is a terminal genetic disease that results in loss of nerves in the spinal cord and weakness of the muscles connected with those nerves. Jonas beat the odds and lived with us for almost three years! He returned to heaven November 18, 2010. Every day we had with him here on earth was our heaven. We are better people because of Jonas and miss him everyday.