Mom?
Riley when she was little
Maybe McFly
Thursday, June 12, 2008
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2 years old
1 year old
8 months
2 years
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...yesterday is history, tomorrow is a mystery, but today is a gift...that is why it is called the present...
Maggie's Memorial Fund
Twisted Silver Website
What We Believe
Whit and I have been married for 9 years now. How time flies when you are having fun. We have the most precious baby boy named Jonas. He is in Heaven right now, waiting for us to return to him. We miss him every minute. We also have a little girl named Maggie, who has the same disease that her brother had. Time with her is limited as well, so we continue to do what we did with her brother...enjoy every minute! We are so blessed to have the most beautiful children and even though our time with them will be short, we know we will be with them again!
Jonas Mathie
Jonas was born on December 2, 2007. At six weeks old Jonas was diagnosed with a genetic disorder called SMA (spinal muscular atrophy). SMA Type I is a terminal genetic disease that results in loss of nerves in the spinal cord and weakness of the muscles connected with those nerves. Jonas beat the odds and lived with us for almost three years! He returned to heaven November 18, 2010. Every day we had with him here on earth was our heaven. We are better people because of Jonas and miss him everyday.
2 years old
1 year old
Margaret Rachel
Maggie was born August 27, 2010. Like her brother she too has Spinal Muscular Atrophy, SMA Type I. Since day four of her life she has been on medicine that has prolonged her onset and is much stronger. Each and every day is treasured and we can't wait to share stories of her brother with her.
8 months
2 years
Spread Magic Around Carnival and Auction
Friends and Family
- Aunt Sandy
- Morgan,Lindsay, M, L & W
- Nick, Chris and girls
- Brandon, Christine, and girls
- Kim and Suzanne Hoyt
- TJ - Navy Man
- Jarom and Trisha Summers
- Paul Taylor Family
- Sarah and Spencer Evans
- Chris and Amanda Jones
- Kellee and Zak Mudrow
- Ali and Andrew Flegal
- Ashley and Cameron Owens
- Whitney and Alan Topham
- Katie and Jeff Wood
- Keri and Taylor Cannon
SMA Buddies
4 comments:
Hey Whit, Lindsay and Baby Jonas! So I was so excited to come across your blog on Whit's facebook profile. I have been thinking about you guys a lot and just hoping that everything is okay with your little guy! It is so good to see all these photos of him--I can see he is a very special little boy that brings a lot of joy to his wonderful parents. He is quite the looker--a mini Whit! He is very blessed to have such amazing and loving parents! I hope you guys are well and know that are prayers are with you. We are in California now so if you come down to Disneyland again or to the beach let us know!
Love,
Chris and Amanda Jones
P.S. come see our blog at amandaandchrisjones.blogspot.com
Hey Linds, I erased my blog contacts and it took a while to find you again! But, don't worry, I did. Hey, we should get together sometime, it's been TOO long. What do ya think?? I'd like to meet your special little guy in person.
Hi Whit,
This is Darren and Jody Riggs. We talked to you at Primary Children's a few weeks back and we are just barely checking out your blog. You have a beautiful family and Jonas is a very handsome little guy. I wanted to tell let you know how much my husband and I appreciated your visit. It is very comforting for us to know that there is someone out there who knows what we are going through. I hope that we will be able to keep in touch via email or phone or whatever is the most comfortable for you all. Thanks again,
Darren, Jody, Hadley and Karson Riggs
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