Jonas loves to do this every time he is on his changing table.
Saturday, August 23, 2008
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2 years old
1 year old
8 months
2 years
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...yesterday is history, tomorrow is a mystery, but today is a gift...that is why it is called the present...
Maggie's Memorial Fund
Twisted Silver Website
What We Believe
Whit and I have been married for 9 years now. How time flies when you are having fun. We have the most precious baby boy named Jonas. He is in Heaven right now, waiting for us to return to him. We miss him every minute. We also have a little girl named Maggie, who has the same disease that her brother had. Time with her is limited as well, so we continue to do what we did with her brother...enjoy every minute! We are so blessed to have the most beautiful children and even though our time with them will be short, we know we will be with them again!
Jonas Mathie
Jonas was born on December 2, 2007. At six weeks old Jonas was diagnosed with a genetic disorder called SMA (spinal muscular atrophy). SMA Type I is a terminal genetic disease that results in loss of nerves in the spinal cord and weakness of the muscles connected with those nerves. Jonas beat the odds and lived with us for almost three years! He returned to heaven November 18, 2010. Every day we had with him here on earth was our heaven. We are better people because of Jonas and miss him everyday.
2 years old
1 year old
Margaret Rachel
Maggie was born August 27, 2010. Like her brother she too has Spinal Muscular Atrophy, SMA Type I. Since day four of her life she has been on medicine that has prolonged her onset and is much stronger. Each and every day is treasured and we can't wait to share stories of her brother with her.
8 months
2 years
Spread Magic Around Carnival and Auction
Friends and Family
- Aunt Sandy
- Morgan,Lindsay, M, L & W
- Nick, Chris and girls
- Brandon, Christine, and girls
- Kim and Suzanne Hoyt
- TJ - Navy Man
- Jarom and Trisha Summers
- Paul Taylor Family
- Sarah and Spencer Evans
- Chris and Amanda Jones
- Kellee and Zak Mudrow
- Ali and Andrew Flegal
- Ashley and Cameron Owens
- Whitney and Alan Topham
- Katie and Jeff Wood
- Keri and Taylor Cannon
SMA Buddies
4 comments:
I just watched your video and immediately showed Bill. Jonas is just so darn cute. I love that little smirk he gives at the end -- "Got it!" Thank you for your kind and understanding email. It helps. We are thinking of you all,
Victoria -- Gwendolyn's Mommy
I just love seeing my little nephew!!!
I love you all so much and you are constantly in my prayers.
Suz
Oh, be prepared... Kim saw the Ute T on Jonas and is planning on sending a Y t-shirt. Sorry!!!
He believes his BLUE eyes say it all... A true blue cougar fan.
Go Jonas!
Suz
Jonas,
I just came across your blog. You're absolutely adorable! Good job getting that sticker off!
My name is MJ Purk. My real name is Margaret. I am 20 years old and am a junior in college. I have SMA type 1+, meaning I don't fit in any category.
I have an organization that sends blankets to kids with SMA and would love to send one to you. My organization is called B4SMA. My caregiver and several others make the blankets. If you would like more information, check out http://www.our-sma-angels.com/b4sma/
Should you decide that you would like to receive a blanket, please e-mail me (b4sma_kids@yahoo.com) with your post address. All we ask in return is a picture of you with your blanket covering you.
Also, if I can help answer any questions you may have regarding SMA, please don't hesitate to email me at any time. I am not afraid to answer any questions you might have. Big hugs to you and your family.
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