Saturday, May 23, 2009
Jonas Talk
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Jonas has been talking less and less recently and so I have been trying hard to have him say anything! I am surprised he actually did something for the camera. Any noise that he made was good enough to get an animal up. Counting was an added bonus for him..he likes it when we count. I need to video him counting from zero to one with his fingers and telling me that he is one. He likes doing that as well.
2 years old
1 year old
8 months
2 years
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What We Believe
Whit and I have been married for 9 years now. How time flies when you are having fun. We have the most precious baby boy named Jonas. He is in Heaven right now, waiting for us to return to him. We miss him every minute. We also have a little girl named Maggie, who has the same disease that her brother had. Time with her is limited as well, so we continue to do what we did with her brother...enjoy every minute! We are so blessed to have the most beautiful children and even though our time with them will be short, we know we will be with them again!
Jonas Mathie
Jonas was born on December 2, 2007. At six weeks old Jonas was diagnosed with a genetic disorder called SMA (spinal muscular atrophy). SMA Type I is a terminal genetic disease that results in loss of nerves in the spinal cord and weakness of the muscles connected with those nerves. Jonas beat the odds and lived with us for almost three years! He returned to heaven November 18, 2010. Every day we had with him here on earth was our heaven. We are better people because of Jonas and miss him everyday.
2 years old
1 year old
Margaret Rachel
Maggie was born August 27, 2010. Like her brother she too has Spinal Muscular Atrophy, SMA Type I. Since day four of her life she has been on medicine that has prolonged her onset and is much stronger. Each and every day is treasured and we can't wait to share stories of her brother with her.
8 months
2 years
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6 comments:
He is getting so big! I love that he's making those cute noises! Whenever he sees me, he just cries!;) Max is counting down the days til he sees you guys in Disneyland!
such a cute little voice! i love it!
Lindsey, you're so creative. I love the animal puppet idea and to hear Jonas' voice!
That is awesome! Way to go Jonas!
That is the sweetest voice.
The diaper bum picture made me laugh out loud. And this video is so precious. What a dedicated Mom you are. He's totally a smartie.
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