Tomorrow there is a carnival taking place in Farmington, Utah in honor of a little girl named Makenzie who died from a rare form of SMA called SMARD.It sounds like it is going to be very fun and full of activities!
If you wanted something fun to do and at the same time contribute to the research of SMA then this would be a great event to attend.
I've never met this family, but I read a little description of their short experience with their daughter and it brought tears to my eyes, because I can all too easily relate. I wish that I could put my feelings into words as easily as others do. I try and then I start to babble.
Anyway, looks like fun, goes to a great cause and isn't too far from home.
A couple of sites that you can go to see more about this family and other information.
http://livingformrw.blogspot.com/
http://www.gwendolynstrong.com/2010/07/makenzies-live-laugh-breathe-tomorrow.html
3 comments:
Lindsey, I don't know if Whit told you--but awhile back I asked if it was okay to give a family your information. It was a family from my parents ward that had a girl with SMA--this poster is the same that my parents have on their fridge. Its being put on by that same family. My mom is in the relief society and she primarily made the mom and baby matching blankets. Anyway, kind of random.
hey lindsey.. just wanted to say hi and see how things are going. every single time i read the websters blog i start bawling...i wasn't able to make it sat, just wondering if you went? i wish i could've met them. anyway. hope you're doing well and getting ready for your little princess to come. thinking about, as always. ash
Thank you so much Lindsey. I know it means the world to the Websters to feel supported. Thinking of you guys and missing sweet Jonas!!!
Post a Comment