Whit and I have been married for 9 years now. How time flies when you are having fun. We have the most precious baby boy named Jonas. He is in Heaven right now, waiting for us to return to him. We miss him every minute. We also have a little girl named Maggie, who has the same disease that her brother had. Time with her is limited as well, so we continue to do what we did with her brother...enjoy every minute! We are so blessed to have the most beautiful children and even though our time with them will be short, we know we will be with them again!
Jonas Mathie
Jonas was born on December 2, 2007. At six weeks old Jonas was diagnosed with a genetic disorder called SMA (spinal muscular atrophy). SMA Type I is a terminal genetic disease that results in loss of nerves in the spinal cord and weakness of the muscles connected with those nerves. Jonas beat the odds and lived with us for almost three years! He returned to heaven November 18, 2010. Every day we had with him here on earth was our heaven. We are better people because of Jonas and miss him everyday.
2 years old
1 year old
Margaret Rachel
Maggie was born August 27, 2010. Like her brother she too has Spinal Muscular Atrophy, SMA Type I. Since day four of her life she has been on medicine that has prolonged her onset and is much stronger. Each and every day is treasured and we can't wait to share stories of her brother with her.
8 months
2 years
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12 comments:
I am so sorry your sweet girl isn't feeling well.... every child should be loved and cared for the way you love and care for yours. Happy birthday!
Sending up extra prayers for her tonight. Praying for God to heal her little body!!!
no fun! hopping maggie a speeding recovery.
Hi ! I've discovered your blog through Jessica Gustavson's one. I'll pray for your sweet baby girl and hope for a quick recovery ! Take care xxx
Praying for sweet Maggie and your family! Hugs to you all!
Oh, sweet Maggie. Get better fast so you can enjoy the holidays! It is such a scary time right now. Lots of hugs from Lucy and her family!
Oh Maggs! So sorry she is not feeling well. Please let me know if I can do anything. She is so cute!
Loved Whit's post on your birthday Linds! Happy birthday! You two are so incredible!
Love you - Ash
Maggie girl, praying for you and hoping that you are feeling much better soon! I am SO sorry that you are sick. :((
Love you,
Cathy in Missouri
Keeping you all and sweet Miss Maggie in our prayers.
No pressure for an update - just wanted you to know that you and Maggie stay in my thoughts and prayers.
I have been getting pretty worried about her, but am hoping that you are on a vacation and NOT in the hospital!
Love,
Cathy in Missouri
just wondering how sweet maggie is doing? hope all is well
Just checked in to see if sweet Maggie was Feeling better... I sure hope she is!!!
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