What can we say... we love it...

Oh Disneyland! It calls to us and we can not resist. Think what you will, but we love it and for us it is a great place to create memories. This time some memories that we don't really want to remember. (this might take long, sorry in advance)
Before we even went we knew this was going to be more of a challenging trip than others. Jonas has been struggling with his secretions and he hates his stroller. It is just not comfortable and he can't see out. He also is more dependent on his bi-pap and can't take a good nap without it. We tried to be prepared for that and purchased a portable battery and inverter so that we could use his bipap in the park. We also borrowed a vest for Jonas to use in the car rather than his carseat. He can lie flat and it was awesome! He loves it. Jonas is the best car traveler. This time he could even watch the movies with us.
The day that we got to California we decided to go to Disneyland. That night we went to put his bi-pap on and it wouldn't work. Great! We just bought this expensive battery and its already not going to work! Whit had to remind me that we were in Cali and not in Mexico...we could get something else. It was really frustrating to have that happen though. We'd used it at home to make sure this wouldn't happen. I'm just grateful that Jonas didn't really need it at the moment.
Luckily, the battery was too low to allow it to start. So we charged it again and never had a problem.
The next day Jonas did rather well, until later that night. While we were waiting for my parents and Logan to come off a ride Jonas woke up from a nap. We thought we would take his bi-pap off (as to not waste the battery) and he immediately started to struggle(choking,sweating, etc). We suctioned him, but it was not helping. He has done this before at home, but I have everything there to help, so being there with only the suction made me freak out a bit. Whit calmed us both down and he was fine. We put his mask on for a little longer to give him a break.
Later that night is when it seemed all hell broke loose. We went to the Rainforest Cafe for dinner. If you've never been to the Rainforest Cafe you should go..it's fun. They have rain storms every so often and the lights flicker, the animals start talking, yada yada yada. Well, Jonas never likes it when we eat dinner and he has to sit there and stare at us. Put that together with not liking his stroller to see out, being uncomfortable, tired, and loud elephants right in your face. He had made it through one of the rain storms, but the next one pushed him over the edge. He started to cry and so I took him out to comfort him and so that he could see better. Well he immediatly started to choke again. I grabbed the suction, which was again doing nothing. However, Jonas was already gray/blue and closing his eyes. From experience of the earlier episode I try to calm him down and start singing. All the world is shut out and I'll I can see and hear is my Jonas gasping for air then no sounds, eyes rolling in the back of his head, and myself singing and calling his name. I thought that was it. Jonas was leaving me, but no, please not here not now. I pleaded with him to come back and each time I said his name he would try to open his eyes. Whit threw on his mask to give him air and help and he opened his eyes and started to cry and then fell asleep. He was exsausted, but he was not gone. Needless to say we put him in his stroller and we were on our way out the door. Thanks to Grammie and Papa for handling the check and boxing up our food. By the time we got to the hotel, Jonas was sound asleep and his sats where 100%.
Crazy as we are... we went out again the next day. This time with oxygen. But the dumb weather had to be in the 90's and again Jonas had an episode. This time we didn't fuss with anything. We slapped his bi-pap on and went straight to the hotel. He was again fine by the time we made it back, but we waited until it cooled down to head back out (call us crazy again).
Well I'm tired just writing this and I'm sure that you are bored by now. Jonas was perfectly ok the rest of the time. We still had a wonderful time! Jonas was blessed and it was not his time to go. Don't even think that scared us off of going back..we just learned what to do for the next time.
A million thanks to my parents for making the trip possible and for Logan, the best teenager in the whole wide world.