This is Jonas' borrowed stander from our PT, Stephanie. It's not quite perfect as you can tell by the no head support. We tried to get a different kind through our insurance last October and yet to see it happen. Geez, they make me crazy! Anyway, this is how we do it when it's the two of us. I'm wondering how comfortable it is?
Another big piece of equipment to fit into our tiny home. Yeah!! The monkey is always in the room with us even if we aren't using it and Jonas likes to always check it out, make sure he's OK. We talk to the monkey, which we learned from Tarzan.
Kind of a cute story...I was talking to Jonas about Disneyland and some of the rides. I actually had his full attention. I mentioned Alice in Wonderland and how we can go twirling in the teacups, riding in the caterpillar across the leafs, and then we can fall down the hole with the white rabbit. After I said this, he got a little sad pout on his face and worry washed over him. Then he started to cry. He really understood what I said and he didn't want to do that! I told him I would hold onto him, but then I said, Ok, Ok, we won't fall down the hole. He immediately was better. Funny little guy! I love him!
Sunday, March 1, 2009
My little monkey
Posted by
Whit, Lindsey, Jonas, and Maggie
at
12:11 PM
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6 comments:
These SMA kids are too smart!! The stander is really cute. We're waiting on ours.
I know what you mean about the equipment. We're packed to the gills. We've got to get a bigger place.
Jonas looks like he's doing well in that stander. He looks so cute! I haven't read the blogs lately so I just was reading your thoughts at 4:00 am. You just described everything we went through. It's nice to know that there are others that know how we feel.
I cant even begin to tell you how much I feel like you feel! Your thoughts at 4am and now your blog about having all this equipment in a tiny house I can totally understand. Jonas is a very cute guy. I am not even going into the fighting with the insurance thing but I get it. I am totally praying for you guys and I know you have many people out there but I am here if you need to talk.
WOW! He is so big. I love looking at these pics and viewing the many hair stylings of my little brother. I cannot BELIEVE the the stuff you let him get away with. You are a good woman!
Love you all!
Suz
You don't know us but we are in and out of PCMC a lot and Whit has helped us out quite a bit with our little heart baby. We really like him and get excited when he's our Tech. He gave us your blog forever ago and we're just now looking at it.
You're little Jonas is truly such an adorable boy! I have just been reading and reading and am in awe with the emotion that you put into your posts! I envy the bond that you and Jonas have! I can tell by the expressions on his face what an amazing life you have given him!!! I have gone through so many emotions you have explained. I'm excited to follow your blog!
Wow, I have not talked to you both in years! I was very touched and emotional reading this blog. I admire both of you very much and really think Jonas is a beautiful boy.
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