Coleman Family: Catching some rays

Monday, April 19, 2010

Catching some rays

What do you think of this amazing outfit Jonas has on? Sweet hat (a little big), short jammie top, just a diaper, and DAFO's (his shoes). We are in the mode of not getting dressed for awhile, but it doesn't stop us from enjoying the beautiful weather. A little hot in Jonas' eyes..hence the not so happy face and the struggle to be without his Bi-pap. He's a trooper and lasted a little while. We love the sun!! Especially when in the shade..Jonas says.

3 comments:

Rebecah Ogden said...: love it! do you think you'll try to get jonas a power chair? i know that have lots of options as far as joy sticks and buttons for him to power it.; April 19, 2010 at 10:27 PM
dorneys said...: Dont worry Jonas we all have sweet outfits we wear :) Its so nice to finally see the sun!; April 21, 2010 at 12:05 PM
Cher said...: so funny. i hope the weather in utah continues to warm up!!; April 22, 2010 at 6:13 PM

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Whit and I have been married for 9 years now. How time flies when you are having fun. We have the most precious baby boy named Jonas. He is in Heaven right now, waiting for us to return to him. We miss him every minute. We also have a little girl named Maggie, who has the same disease that her brother had. Time with her is limited as well, so we continue to do what we did with her brother...enjoy every minute! We are so blessed to have the most beautiful children and even though our time with them will be short, we know we will be with them again!

Jonas Mathie

Jonas was born on December 2, 2007. At six weeks old Jonas was diagnosed with a genetic disorder called SMA (spinal muscular atrophy). SMA Type I is a terminal genetic disease that results in loss of nerves in the spinal cord and weakness of the muscles connected with those nerves. Jonas beat the odds and lived with us for almost three years! He returned to heaven November 18, 2010. Every day we had with him here on earth was our heaven. We are better people because of Jonas and miss him everyday.