Yesterday started out not to bad, but as the day went on it got worse and worse.
By about 5 o'clock the power had gone out and we were left in the dark.
The interesting thing is that not only did this storm pass outside, but through our lives as well.
I guess I should officially announce that we are expecting a baby in September.
A baby girl to be exact.
And this baby girl will also have SMA.
We received a phone call from our genetic counselor at 5 o'clock, he told us the news and the power went out.
We knew this could be a possibility. The decision wasn't made lightly..there were prayers, fasting, temple sessions...and we felt like no matter what was to be we could handle it. I have to admit it's a little harder knowing the outcome now. I've second guessed, I'm heartbroken, I'm scared, but we can only move forward. The day after the storm we are trying with all our might to pick up our hearts and carry on.
By about 5 o'clock the power had gone out and we were left in the dark.
The interesting thing is that not only did this storm pass outside, but through our lives as well.
I guess I should officially announce that we are expecting a baby in September.
A baby girl to be exact.
And this baby girl will also have SMA.
We received a phone call from our genetic counselor at 5 o'clock, he told us the news and the power went out.
We knew this could be a possibility. The decision wasn't made lightly..there were prayers, fasting, temple sessions...and we felt like no matter what was to be we could handle it. I have to admit it's a little harder knowing the outcome now. I've second guessed, I'm heartbroken, I'm scared, but we can only move forward. The day after the storm we are trying with all our might to pick up our hearts and carry on.
26 comments:
I understand you being heartbroken, I've never wanted to say it, but I think its the most heartbreaking disease I've seen. But Jonas is so cute, and a baby girl with those blue eyes will be gorgeous. I'm excited for you!
Sorry if that comment sounded bad, its just that I love how Whit has always been so open about me asking questions about a disease I'd never heard of! Your doing great with Jonas and raising awarness for this disease so we can find a cure!
Congratulations on adding a new member to your family! I am so sorry about the diagnosis.
Lindsey,
Congratulations on the new baby girl. I know she will bring a special joy to your family. You and Whit are amazing parents, you have more strength that you even know. Jonas and Baby are lucky to have parents such a yourselves. I will be praying for God's will and for extended strength to endure the weeks, months, and years ahead.
God Bless,
Destiny
Lindsey,
Jonas and his little sister are lucky to have you as their Mom. You guys are such a great family.
We'll keep you in our prayers.
p.s. I thought of you guys last night and hoped your generater kicked in!
How wonderful to have a beautiful baby girl. My heart and prayers go out to you. Love ya
Congratulations to Jonas on becoming a big brother!!
We love you and Jonas so very much. This amazing daughter is so blessed to becoming to your family. This may sound trite, but I sincerely mean it when I say that you inspire me so much!
Lindsey, Whit, and Jonas.....
We LOVE you!!
We love you all ~ and are thinking of you!
We love you, Whit, sweet Jonas and now sweet baby girl! Our prayers will continue in your behalf! We love your sweet little family. xoxo
Congratulations Whit and Lindsey! I am so impressed with you both and little Jonas. You will all be in our prayers and we can't wait to meet your new blue eyed beauty. We love you-Pehrsons
I just wanted to say congratulations on your pregnancy and I am so sorry to hear that your baby girl will have SMA. The one thing to think about though is how wonderful it will be for Jonas to have a sibling that's just like him-someone who gets what this disease means and someone to be there for him in a way that no one else can. I know it doesn't make things better now, but I just wanted to share that little thought. Much love and prayers to you and your family.
I just think that your family is amazing. And what a blessing you are (and will be) to these sweet spirits in your home. How exciting to have your family keep growing! I know you will be in a lot of peoples' prayers, including mine. Whit- you are an incredible example to everyone you work with, and I have no doubt your wife is the same. Much love to your family! Jillian Olsen
i don't think any words can ease the pain.. but just know that we're thinking of you.. and it is really true that these 2 kiddos are blessed to have you 2 as parents. if you ever need anything, or need to talk...let me know.
love ash and cam
It's so easy to focus on the difficulties that a new baby girl with SMA will include, and I'm sure it will be difficult. I hope that you will continue to focus on the great blessings and fun adventures that will also be part of it. Love you. You'll do great!
Darren and I were talking about what special amazing people you are. I admire your Faith and courage!!! We are so Happy for you but at the same time we are VERY sad. We know that Heavenly Father will take care of you. I'm so glad Jonas is going to have a little sister!! Please know that you are ALWAYS in our prayers. Hope to talk to you soon
Love The Riggs
We are so happy for you, Jonas will be a great big brother. The second time with SMA is easier in some ways, the physical things, pumps, bipap and such. Emotionally and mentally have been harder for us, but we know our Heavenly Father is there and loves us all, and has a plan. And it is so wonderful to have our children. Whit I think you have our number, feel free to call. The White's
i had no idea you were expecting. congrats to jonas on being a big brother
Oh, Lindsey. There really are no words that fit when you are going through a storm like this one; "Only the Suffering God can help." He knows it all.
No better parents or brother could possibly be found for this little girl and we welcome her life - and also know that in many ways, your family is being pressed far beyond what any human can bear.
You are, and will be, in my prayers.
Thank you for letting us walk with you through your writing. I know that doesn't take away the pain and struggle. It is brave of you to let us in.
Loving your family,
Cathy Groves
Congratulations on a sweet new baby girl. My heart goes out to you on the diagnosis. Girls are so much fun though and Jonas is going to be a fabulous big brother! We love you guys, let me know if you need anything.
I'm so happy that you guys get to have a little girl. No matter what she will be such a wonderful addition to your family and I know you and Whit are the parents she is supposed to have. You are incredible!
Just wanted to let you know that our prayers will be with you and I know that the Lord has sent this little girl to you for a reason. You are both amazing parents and a wonderful example to me of optimism and faith. We love you!
I am so, so sorry to learn you will have to face this horrible disease twice. BUT, I know this baby girl is so very lucky to be born into the loving, embracing, and supportive Coleman family. You are amazing parents. Sending hugs to soon-to-be big brother Jonas from Gwendolyn!!!
Whit, it was good to see you while I was in town. I saw this post the day I got home.....all I can say is your little girl could't be coming to a better family. I think the world of both of you....especially since I was friends with each of you separately before you were married! Best of luck to you. You both are such an example to everyone around you. You will be in our prayers!
Congrats on the 2nd addition to the family! Our thoughts and prayers are with you!!!
Hi Lindsey,
You don't know me. I came across your story from the ksl.com newsclip they did about you guys. I was so touched by your wonderful, loving family. You and your husband are incredible people.
I don't want to say I can understand what you are going through- because I don't. But I do want to just offer up encouragement for you guys. We have 3 kids, our first 2 sons were both born with cleft lip and palate. Although it has been hard (we didn't know anything about clefts before having kids- can you say crash course?), and a long journey, there have been many silver linings in having both of our boys born with this condition. They are not alone. They completely understand each other and have sympathy for each other when there is a surgery. They love each other all the more deeply I think because of sharing this special bond.
I know your son and daughter will also have this special bond that no one else can offer them.
Having 2 has also helped us. I can't say it was "easier" the second time around, but it was more familiar, and that lightened the load a bit. And I didn't feel so lost in the fog the second time around. Also, another blessing of having a second child with this condition is that I could finally stop blaming myself and realize that it indeed was something genetic.
Keep your heads/chins up. Please know strangers across the world are praying for you guys. Good luck with everything and I'll be thinking about you as you prepare to welcome this beautiful little girl into your homes/hearts. HUGS!
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