ONE
If you didn't see the first news clip or you really missed seeing our fabulous faces (not) then you will have another opportunity.
Channel 2 News
will be airing another interview tomorrow (Tuesday) night.
A big "Thank You" to those who made this possible.
After these two interviews, I have decided a life of fame and TV is not for me, but I do love spreading the word about SMA!
TWO
Spread Magic Around 5K
Saturday October 30th, 8:00 am
Liberty Park
The party isn't ending with the carnival...but a race!
Again the AMAZING group of friends that are putting on the carnival have gone above and beyond.
They are organizing a 5K run!
I can't wait to get out and enjoy the last bit of fall, by walking (yea I wrote that right...not quite ready to run just yet) around in a beautiful park, with my wonderful group of friends!
To sign up or to get more information go to:
www.spreadmagicaround.blogspot.com
Channel 2 News
will be airing another interview tomorrow (Tuesday) night.
A big "Thank You" to those who made this possible.
After these two interviews, I have decided a life of fame and TV is not for me, but I do love spreading the word about SMA!
TWOSpread Magic Around 5K
Saturday October 30th, 8:00 am
Liberty Park
The party isn't ending with the carnival...but a race!
Again the AMAZING group of friends that are putting on the carnival have gone above and beyond.
They are organizing a 5K run!
I can't wait to get out and enjoy the last bit of fall, by walking (yea I wrote that right...not quite ready to run just yet) around in a beautiful park, with my wonderful group of friends!
To sign up or to get more information go to:
www.spreadmagicaround.blogspot.com
3 comments:
I just came across your blog through another I follow and just wanted to say i admire you and your family. I hope and pray for you and your little ones and know that even though they are here for so short of a time they were meant to come to you. God sends these precious little ones to those of us who He knows can handle the tough roads of their lives. May God be with you and your family ALWAYS and know there are others out there who too have loved and cared for terminal children and we have you in our hearts and prayers.
I just wanted to let you know that your son has touched my heart very, very much. When I watched you video I couldn't stop crying. The picture of Jonas on the ventilator reminded me so much of my own son, who is just three months older than Jonas and has also had a number of health problems and spent a lot of time at PCMC.
I told my wife we have to go to the carnival tomorrow to lend you our support and love. Hope you will be there so we can say hi.
We have a two year old son like Jonas and we are so grateful that you would share your life with us through this wonderful blog. We will be eagerly looking for new posts! Let Jonas know how much his courage has meant to us. Also please allow me to say that your courage as parents, and the love and charity that we feel through you has made us better parents forever. We cant thank you enough. We're rooting for you every day!
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