Aunt Lindsay is funny...looking... just kidding. She's so nice to want to hold me, I'm kind of hard to hold.
A day late, but all the same Jonas is 20 months old now. Can't believe it, well actually I can because he is awesome and life wouldn't be right with out him. He is just about as big as his three year old cousin, Max. 34 in long! Probably taller now, that was measurements from 2 months ago.
Hey lindsey. I wanted to invite you and jonas to a park and lunch on wed the 5th (2 days). We are meeting at 12 at canyon rim park. I don't have your number or email so I hope you see this in time. I would love to meet jonas and see you again. Some of the girls from high school are coming too. Mel s coming and keri and marianne for sure. My email is wtopham@msn.com let me know if you can come! I hope you can.
I'm writing a note to you on SMASpace, but when I saw you had a blog, I had to stop and snoop!
A friend/fellow SMA mom and I are doing a blog (http://thesuitelifeoflucyandethel.blogspot.com/) and would love to add Jonas' blog to our SMA Families page (http://thejeffreyjourney.com/smafamilies.html).
Oh my gosh he is a cutie... I love seeing all of the pics. You guys are the cutest parents. Hope all is well! It's so fun seeing what you've been up to! xoxo
Yea, that picture looks more awkward than it felt...I LOVE holding little Jono-man! He's my fav! I'm not so sure he likes me holding him, though...I need more practice!
Whit and I have been married for 9 years now. How time flies when you are having fun. We have the most precious baby boy named Jonas. He is in Heaven right now, waiting for us to return to him. We miss him every minute. We also have a little girl named Maggie, who has the same disease that her brother had. Time with her is limited as well, so we continue to do what we did with her brother...enjoy every minute! We are so blessed to have the most beautiful children and even though our time with them will be short, we know we will be with them again!
Jonas Mathie
Jonas was born on December 2, 2007. At six weeks old Jonas was diagnosed with a genetic disorder called SMA (spinal muscular atrophy). SMA Type I is a terminal genetic disease that results in loss of nerves in the spinal cord and weakness of the muscles connected with those nerves. Jonas beat the odds and lived with us for almost three years! He returned to heaven November 18, 2010. Every day we had with him here on earth was our heaven. We are better people because of Jonas and miss him everyday.
2 years old
1 year old
Margaret Rachel
Maggie was born August 27, 2010. Like her brother she too has Spinal Muscular Atrophy, SMA Type I. Since day four of her life she has been on medicine that has prolonged her onset and is much stronger. Each and every day is treasured and we can't wait to share stories of her brother with her.
8 months
2 years
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6 comments:
I LOVE the pic of Jonas and Max!!
Hey, it was so nice to talk to Whit on the phone today! I told him to tell you hi so if he didn't bust him.
I love the new background. I need to update Dakin's...
Hey lindsey. I wanted to invite you and jonas to a park and lunch on wed the 5th (2 days). We are meeting at 12 at canyon rim park. I don't have your number or email so I hope you see this in time. I would love to meet jonas and see you again. Some of the girls from high school are coming too. Mel s coming and keri and marianne for sure. My email is wtopham@msn.com let me know if you can come! I hope you can.
jonas you're such a big boy now!
I'm writing a note to you on SMASpace, but when I saw you had a blog, I had to stop and snoop!
A friend/fellow SMA mom and I are doing a blog (http://thesuitelifeoflucyandethel.blogspot.com/) and would love to add Jonas' blog to our SMA Families page (http://thejeffreyjourney.com/smafamilies.html).
Just let me know!
Back to the note on SMASpace :)
Helen/'Lucy'
jeffreyb@skybest.com
Oh my gosh he is a cutie... I love seeing all of the pics. You guys are the cutest parents. Hope all is well! It's so fun seeing what you've been up to! xoxo
Yea, that picture looks more awkward than it felt...I LOVE holding little Jono-man! He's my fav! I'm not so sure he likes me holding him, though...I need more practice!
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