Do you think we should start lessons?
Saturday, August 1, 2009
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2 years old
1 year old
8 months
2 years
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...yesterday is history, tomorrow is a mystery, but today is a gift...that is why it is called the present...
Maggie's Memorial Fund
Twisted Silver Website
What We Believe
Whit and I have been married for 9 years now. How time flies when you are having fun. We have the most precious baby boy named Jonas. He is in Heaven right now, waiting for us to return to him. We miss him every minute. We also have a little girl named Maggie, who has the same disease that her brother had. Time with her is limited as well, so we continue to do what we did with her brother...enjoy every minute! We are so blessed to have the most beautiful children and even though our time with them will be short, we know we will be with them again!
Jonas Mathie
Jonas was born on December 2, 2007. At six weeks old Jonas was diagnosed with a genetic disorder called SMA (spinal muscular atrophy). SMA Type I is a terminal genetic disease that results in loss of nerves in the spinal cord and weakness of the muscles connected with those nerves. Jonas beat the odds and lived with us for almost three years! He returned to heaven November 18, 2010. Every day we had with him here on earth was our heaven. We are better people because of Jonas and miss him everyday.
2 years old
1 year old
Margaret Rachel
Maggie was born August 27, 2010. Like her brother she too has Spinal Muscular Atrophy, SMA Type I. Since day four of her life she has been on medicine that has prolonged her onset and is much stronger. Each and every day is treasured and we can't wait to share stories of her brother with her.
8 months
2 years
Spread Magic Around Carnival and Auction
Friends and Family
- Aunt Sandy
- Morgan,Lindsay, M, L & W
- Nick, Chris and girls
- Brandon, Christine, and girls
- Kim and Suzanne Hoyt
- TJ - Navy Man
- Jarom and Trisha Summers
- Paul Taylor Family
- Sarah and Spencer Evans
- Chris and Amanda Jones
- Kellee and Zak Mudrow
- Ali and Andrew Flegal
- Ashley and Cameron Owens
- Whitney and Alan Topham
- Katie and Jeff Wood
- Keri and Taylor Cannon
SMA Buddies
3 comments:
AWESOME! What is he in? The stander? He looks great!
Hey, I am spotlighting SMA families on Dakin's blog for SMA Awareness Month. I would love to share Jonas' story, if you don't mind. If you do, it's totally cool, if you don't mind, write me something up and email me--pictures, whatever you feel like.
Dang, he just keeps getting more handsome! I LOVE the MOM shirt!
LOL, that is awesome. He looks so cute. Watch our Mozart, here comes Jonas!
Lindsey! Somehow I found your blog and I am so glad I did! I hope you remember me from our Kappa days long ago... my name was Barbara Spencer then.
I have been spending the last hour or so catching up on your life and learning all about your beautiful son. What a wonderful mama you are- full of grace and love. I have no doubt that you and Jonas were always meant for each other- a match made in heaven. I just had a baby boy a few months ago and my mother heart aches for you and this trial that you have been given. Your Jonas is a gift and I am so happy for every day that you and Whit get to spend with him.
I would love to get together sometime or even just talk on the phone! Email me when you get a chance- barbaralynnthornton at gmail dot com.
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