This coming Saturday there is a fundraiser for SMA, it's called a Walk & Roll. The money that is gathered by registering and/or donating goes to research for curing SMA. The money also helps new families that have been diagnosed with things like care packages and equipment. When Jonas was first diagnosed he was sent a sheepskin that helps prevent bed sores, he still uses it today!
We decided that this was something that would be easy and fun to get involved with and would love to have as much support as we can.
It would be so fun to have a group walking for Team Jonas!
The next best thing would be to have a great donation amount sent in Jonas' name. Any amount would be so awesome!
Here are some more details on the event:
August 29 2009 * Park City Utah
INFO
Willow Creek Park
4460 N Split Rail Ln
Park City Utah
10:00am Walk Registration
11:00am Walk-n-Roll Begins
11:00am-3:00pm Carnival
Since this is our first time, I have no idea how far the walk is, maybe 20 miles...just kidding!
Like it mentions you can register that day or if you'd rather you can register online. Here is the website where you can find the link to register.
(or skip that step and click on the picture above)
www.utahsma.showitsite.com
When you get to this page click on Walk & Roll, then click on Registration (this will take you to a new website called Families of SMA)
You will have two choices to click on : Register
Donate
If you are registering you will have 6 steps that it will guide you through. You can become a member of Jonas' team by clicking on Team Jonas.
Thank you for all the support and love that you all have shown Jonas and us in so many ways already!! We are the most blessed family because of all of you. We make it through each day because we know how many people love us and pray for us everyday.
Yeah! For the Walk and Roll!!!
The next best thing would be to have a great donation amount sent in Jonas' name. Any amount would be so awesome!
Here are some more details on the event:
August 29 2009 * Park City Utah
INFO
Willow Creek Park
4460 N Split Rail Ln
Park City Utah
10:00am Walk Registration
11:00am Walk-n-Roll Begins
11:00am-3:00pm Carnival
Since this is our first time, I have no idea how far the walk is, maybe 20 miles...just kidding!
Like it mentions you can register that day or if you'd rather you can register online. Here is the website where you can find the link to register.
(or skip that step and click on the picture above)
www.utahsma.showitsite.com
When you get to this page click on Walk & Roll, then click on Registration (this will take you to a new website called Families of SMA)
You will have two choices to click on : Register
Donate
If you are registering you will have 6 steps that it will guide you through. You can become a member of Jonas' team by clicking on Team Jonas.
Thank you for all the support and love that you all have shown Jonas and us in so many ways already!! We are the most blessed family because of all of you. We make it through each day because we know how many people love us and pray for us everyday.
Yeah! For the Walk and Roll!!!
3 comments:
More than anything I wish I could be there, but I can't so I did the next best thing. Together we'll beat this!!! Love you guys!!!
Go TEAM JONAS!!
So, we'll be in Utah... and I'm so tempted to boycott the Flegal trip to Lake Powell so that we can be there! I hope this event gets all the attention it deserves.
I'm glad you made it to Disney again and was mad at the mistreatment you received at certain events but glad that there were some people who went out of their way to show extra love and support! Disney will forever remind me of you and Jonas!
Yay, I can't wait to see you guys! I think its just a walk around the park, lol. 20 miles and I better be getting my own wheels!
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