Friday, January 28, 2011

Happy 5 Month and 1 Day Birthday!!

I can't believe that Maggie is already 5 months old! Are you kidding me! Time with her is flying by. I love this little girl!
She smiles all day long and if she's not smiling then she's blowing raspberries and creating a puddle of saliva on her chin.She's chubby, but yet petite.
She is a champ at her cough assist. Doesn't cry one bit. Bi-pap...that's a different story.
She's trying, but puts up a fight all night long. I hope she can learn to be a good sleeper like her brother was. Please be a good sleeper, like your brother.
Why is it that your heart won't let go of things you know aren't possible?
We were hoping that we could alter her course of this disease, which we have, but not as long as I think we were hoping.
We went and visited Dr. Swoboda today and she is most definitely showing signs of Type I and even has progressed in the disease.
Not to be completely a downer, we couldn't be happier with what she can still do. It's so much more than what dear Jonas could do. But how long can we keep that?? No one knows. We are doing everything we can and only time will tell.
It's far too easy to think of the future. The future that isn't so unimaginable anymore. Because of Jonas that reality is very imaginable, we've been there, we've done that. It's very real. What kind of life would I live if all I ever thought about was that future? So with every effort possible I think of the day at hand. What Maggie can do today and only today and I'm grateful. I did it with Jonas and I will do it with Maggie!
So Happy 5 months and 1 day Maggie Boo! We love you and everything you are!!!

9 comments:

Barb said...

That is the right attitude. Her life is a gift and every day a blessing. She is so beautiful, just like Jonas! (They look so similar to me!)

Gygi Family said...

Happy 5 months MAGGIE! YAHOOOOOOO! So exciting! We love that little chubby face! HANG in there! YOU CAN DO IT!!!! LOVE YOU LOTS!!!!

Lacey said...

Oh my gosh she is the spitting image of her gorgeous brother! Happy 5 months Maggie!

The Johnson Crew said...

I love it!! She is so cute. I love the raspberries and cubby cheeks. I am grateful for your postive attitude even though reality hurts so bad. You are a great example.
Happy 5 months Maggie.

Richard and Emily said...

Happy 5 months Maggie!!! You are looking so beautiful :) Cannon misses his girlfriend, I think we need to get them together soon :).

Groves said...

Oh, Maggie girl, you are loved, loved, loved. We are praying for you as you fight this SMA battle, and for your wonderful Mommy and Daddy, too.

Your Mom is a wise woman; one day at a time. "The future's not ours to see."

But I know what I pray for you, Maggie - a long, long, *long* future with your precious family. I will not stop praying for that.

And I can't comment without saying how much I miss your Jonas. My children were asking about him the other night as they were tucked in bed. They miss him, too.

Lots of love,

Cathy in Missouri

leslie said...

So fun to see you and your cute family in BG on Saturday. You all are truly my heroes. Keep on keepin on.

Suz said...

We love you little Maggie.
Your MN Family,
Kim, Suz, TJ and Rylee

Rebecah Ogden said...

wow, I can't believe that she is 5 months already! it's amazing how quickly the disease sneaks up on you. just remember how amazing you guys are!

Related Posts Plugin for WordPress, Blogger...