Not 2010...but 2011

When I went to look at the pictures I've taken so far in 2011 I clicked on my Jan file and this was the first picture I saw. Obviously not Jan 2011. I hate to keep sounding like a downer, but how I wish this was a picture in my Jan '11 file. Instead it was my Jan '10 file. One year ago, this was Jonas. Smiling without his bi-pap. Man how time and progression went fast. At times it a very bizarre feeling that he is really gone.

This is the first picture in my Jan '11 file: Maggie's first sleep study

This was just the beginning of all the leads on her body...22 in all and when you have a little body there isn't much room. She was a sweetheart until the very end. She was hungry and mad that she had a Rapunzel ponytail.

She calmed down to get the final piece..a nose cannula. It was a long night for every one. I guess it's not easy to sleep with all of that on your head.
Long story, but basically we are doing all the steps we need to take in order for Maggie to be enrolled in the Medicaid Waiver. It's a lot more difficult now than it was with Jonas. Maggie was scheduled for her g-tube surgery last Friday, but we are postponing. She's still doing ok eating, it's not the best time to be in the hospital, and I just don't want to make her go through that yet until I have to. So for now, it's up in the air as to when that surgery will be.

We are still trying to get settled into our home.
Where did all of this stuff come from!!!
However, if I'm lucky enough, I'll be so busy setting up our home that I'll pass through January with ease. I hate January, it makes me blue.
I've thought of something that would brighten up my January posts, but you'll have to wait for tomorrow. (or if you're lucky enough and are just reading this on Mon. then well you've already read it.)