My dear sweet little boy went to be with his Heavenly Father last night.
Friday, November 19, 2010
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1 year old
8 months
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...yesterday is history, tomorrow is a mystery, but today is a gift...that is why it is called the present...
Maggie's Memorial Fund
Twisted Silver Website
What We Believe
Whit and I have been married for 9 years now. How time flies when you are having fun. We have the most precious baby boy named Jonas. He is in Heaven right now, waiting for us to return to him. We miss him every minute. We also have a little girl named Maggie, who has the same disease that her brother had. Time with her is limited as well, so we continue to do what we did with her brother...enjoy every minute! We are so blessed to have the most beautiful children and even though our time with them will be short, we know we will be with them again!
Jonas Mathie
Jonas was born on December 2, 2007. At six weeks old Jonas was diagnosed with a genetic disorder called SMA (spinal muscular atrophy). SMA Type I is a terminal genetic disease that results in loss of nerves in the spinal cord and weakness of the muscles connected with those nerves. Jonas beat the odds and lived with us for almost three years! He returned to heaven November 18, 2010. Every day we had with him here on earth was our heaven. We are better people because of Jonas and miss him everyday.
2 years old
1 year old
Margaret Rachel
Maggie was born August 27, 2010. Like her brother she too has Spinal Muscular Atrophy, SMA Type I. Since day four of her life she has been on medicine that has prolonged her onset and is much stronger. Each and every day is treasured and we can't wait to share stories of her brother with her.
8 months
2 years
Spread Magic Around Carnival and Auction
Friends and Family
- Aunt Sandy
- Morgan,Lindsay, M, L & W
- Nick, Chris and girls
- Brandon, Christine, and girls
- Kim and Suzanne Hoyt
- TJ - Navy Man
- Jarom and Trisha Summers
- Paul Taylor Family
- Sarah and Spencer Evans
- Chris and Amanda Jones
- Kellee and Zak Mudrow
- Ali and Andrew Flegal
- Ashley and Cameron Owens
- Whitney and Alan Topham
- Katie and Jeff Wood
- Keri and Taylor Cannon
SMA Buddies
75 comments:
Lindsey & Whit, My heart is aching for you this morning. I'm so sorry about your sweet Jonas. He is a beautiful boy and you gave him such a great life. I follow your blog and enjoy reading about all of your ups and downs. I've commented before only because I have felt your pains to some extent. I too lost my little Mia to SMA. I actually had a dream about her last night. I wish you dreams, good dreams, of Jonas. You are amazing parents. I look to you for strength in my own life. Again I am so sorry for your loss because I know what you are facing this very day. My love and prayers are with you as you endure this difficult trial. If at anytime you would like to talk or need an SMA shoulder to cry on you can visit my blogs, or my email is coleybug@rocketmail.com
Thank you for your strength, you help so many around you probably more than you know. - Nicole Holland, Kanab Ut - Mia's mom ^i^
Our prayers are with you. Our hearts ache with you. We are so happy we had the privilege of meeting him at the carnival. What a sweet, perfect little boy!
~Hugs~ May God surround you during this time. I aam so sorry and saddened for your loss. Jonas was a blessing to all who knew him (in reallife and blog life!)
Lindsey and Whit,
I am so deeply sorry for your loss. I'm heartbroken for you both. Your precious children are lucky to have you for parents. From reading your blog it is extremely evident that Jonas had a joyful life and that he was loved beyond measure. You are in my prayers.
There are no words. . . .I am so sorry for your loss, my heart is breaking for you. I pray that the Lord will continue to bless and comfort you. I know this is painful, but it is only a temporary seperation, what a blessing to know that and to know your family is forever. Sending my love and prayers to you and your family at this difficult time.
andrea Griggs
So so sorry! What a sweet little boy and spirit he had.
I can't imagine what you guys are going through right now but my thoughts are with you all.
You're wonderful wonderful parents and he couldn't have asked for more!
Our prayers are still with you!
I can't begin to think of all the different emotions you are feeling. I am truly sorry. It is a time like this that I am so grateful for the gospel. Families are Forever.
Much Love,
Brady, Amanda, Millie, and Austin
Oh Lindsey and Whit,
I'm sorry to hear that. My heart is hurting for you. Oh you guys are wonderful and very loved.
Jonas was a beautiful boy who touched my heart in a profound way. I am so very sad and so sorry that your little boy left this Earth much too soon. We have been praying for Jonas and your family and will continue to do so. He was so blessed to have you as parents and to spend some time with his baby sister.
Dear Whit and Lindsey,
Thank you for letting us know and feel of your son's amazing spirit through your blog. He has touched our hearts and will forever be loved and remembered by our family.
I'm so sorry for your heartache and pray that you will be surrounded with Heavenly comfort.
Love,
Ali and Andrew
Whit and Lindsey,
You gave Jonas such a wonderful life here on Earth. He was such a special boy, we are sorry to hear that he has passed on. He was such an angel, he blessed so many peoples lives during his time with us here! What a blessing it was to have him share his sweet spirit with Maggie. We are thinking of you and we send our love.
Love Richard and Emily
We are heartbroken for your family. Jonas was such a beautiful, amazing boy. May the Lord give you the comfort you need at this time. I wish there were words to make the pain less or go away but I haven't found them yet. We will continue to pray for your sweet family and pray that Jonas will be near.
Love the Johnson's
whit and linds..
i wish there were magic words that could take the raw pain away. i cannot imagine the feelings you're having to face, but i do know that you guys can be so proud of how wonderfully you cared for jonas. he certainly was a lucky little guy and got so many amazing opportunities that you made possible for him. our hearts are with you...and we pray the lord will wrap his arms around you during this difficult time. we love you and admire you greatly!
ash and cam
Whit and Lindsey,
I am in shock. I just do not know what to say. I am so sad to hear about Jonas. I was so happy to see updates and hear he was doing well. Whit was so nice and helpful when we were thinking about putting Ray in the FSMA VPA study, which we did. I am sad and I am sure this is nothing compared to what you are going through.
You all did a fantastic job taking care of him and giving him a great quality of life. Please be proud of yourselves and try to get through this difficult time.
Best regards,
Marcy Fantel
I LOVE YOU
Jonas changed my life. Forever.
I am so sorry. I cannot imagine what you are going through right now. I can see the sweet spirit of Jonas even through his pictures. Your family is in our prayers at this time. We love you.
I am so sorry for your loss. I dont personally know you but from following your blog you guys are amazing! I can relate with loosing a child though so if you need an outsource to vent your welcome to comment on my blog brigetterushworth.blogspot.com or email me brigey66@hotmail.com I wish you didnt have to go through this pain. My heart aches for you so much right now. Sending your family much love today and through the very hard next few weeks.
My prayers are with you right now. I don't know your family, but I feel like I do from reading your blog. You seem so optimistic and grateful for all Heavenly Father has given you. I love that! I love reading you blog and seeing your beautiful pictures or your beautiful family. I can't imagine the pain you are feeling, but think of the most joyful reunion with Heavenly Father! I love you and sweet Jonas was a fighter and touched many spirits without knowing him personnally.
xox
Our deepest, deepest sympathy for you and your family. Jonas was such a sweet, beautiful little boy. He will be greatly missed and never forgotten. Sending all our love!
The Gooden Family
Your family is in my prayers as you have to face this loss. You are such wonderful inspiring people and you have been in my thoughts and prayers long. HUGS!
I have been following your blog since the special on KSL. My heart is aching this morning at the news of your loss. I lost a little brother 23 years ago, and know that Jonas will be watching over little Maggie. My thoughts and prayers are with you and your family. May God bless you with peace and comfort at this time.
All my love!!!
Oh my heart breaks for you both! I read this and instantly started to cry. Your little family is an inspiration to all who know you. I feel honored to know both of you, and especially to have known cute Jonas. Please know we are praying for you!!!
I am so sorry to hear that Jonas has passed away. I have been reading your blog and praying for your family for awhile. You are in my thoughts and prayers today and always.
Sarah in Michigann
I know that you don't know me, but I just saw your blog from fauset photographys post.
I just want you to know that my heart is broken for you, i sit here just sobbing for your loss.
Thank you for reminding me to be greatful everyday for my healthy little boys.
Your in my prayers.
Oh, there are not words enough to describe the joy and light that Jonas brought to this earth, for the extent of the love you shared, and for this crushing grief. I am so sorry. You will be in my prayers that you can feel peace. All my love.
I just met your family and hardly knew you, but you have captured a piece of my heart and forever changed me. Thank you for letting me into your world. Your family is in my thoughts and prayers. Please let me know if you need anything.
Tamara Zappe
Petersen Medical
Whit and Lindsey, I am so so so truly truly heartbroken for you. I am so sorry. We are praying for you all--please, if there is anything I can do, please please let me know.
Jonas touched so many lives (ours included!!!) and will continue to do so.
love is sent your way from our family---you don't know us but I have followed your blog a little since I was sent the link from a friend... what a darling little family you have and our prayers are with you! so happy to know darling little Jonas is with Heavenly Father!
I'm so sorry for your loss. My heart goes out to you and your family in this difficult time.
(I'm Jen Fauset's sister-in-law and loved the images she captured for you guys a little while back.)
Whit & Lindsay, I have followed Jonas' blog for a long time now, and reading this news has made me cry and cry. I have always enjoyed reading about Jonas as he reminds me so much of my son Luca, also Type 1. Our heart truly goes out to you. We are so so sorry.
Lindsay and Whit, We wish we could take away your pain.We can't imagine what you are going through. We are so saddened to hear of Jonas's passing.His beautiful blue eyes and calm, strong face will always be imprinted in our minds. It all seems so unfair and hard to understand but we are certain, without a doubt, is that Jonas IS happy and he understands the whys behind all of this. We are also certain that the strength, courage and grace that your family has displayed as you have dealt with the horrible realities of SMA provides inspiration and strength to many on both sides of the veil.Our girls send their love, too.They,too, sensed the powerful spirit Jonas is. We are praying for you.
XXOO
Rachel and Rob Howe
I'm so grateful that I got to meet Jonas a few times even though I don't live there. He really is the sweetest boy and he has certainly touched our lives. We love your family and hope you can feel all of the support and love you have from so many over the next weeks and months. You have all been on an incredibly difficult journey and we admire you all so much. Hang in there. You are amazing.
Dear Lindsey & Whit,
All my love to you in this terribly hard time of sorrow for you.
Dear Whit and Lindsey,
I have followed your blog for the past two years (I am the Aunt of Luca Fuorvito who also has sma type 1) and I cannot express how sad I am for the loss of your beautiful son. I want to send you all my love and to tell you not a day goes by when I have not thought of Jonas nor will one go by now where I will not remember him and his funny ways and his love of all things disney. You are in my prayers. Much love, Rachel
I read your blog, but you don't know me, I'm sure. I don't even remember how I came upon your blog but I've been strengthend by reading it. I'm very, very sorry for your loss. Many prayers will be with you and your family. So sorry.
Lindsey, I know you don't know me, but I worked with Whit on CSU. I have read your blog faithfully and it is very evident to me that Jonas and Maggie came to the right parents!! You gave Jonas all that you had and more. He was so blessed to be able to come to this earth and have you as a family. Best of luck during this very trying time!!-Shelley Holt
I know you have a lot of comments already, but I wanted to let you know that we're praying for you too! My heart literally hurts for you right now to think of what you're going through - not to mention caring for your little girl through it all. I dread that day for Skylar and I also know our time is limited. Today is Skylar's 1 year birthday, which is definitely something to celebrate, but I was devastated to hear about your loss. I am so sorry. I wish there was something that someone could do to make it better. The only comfort I have to offer is that I believe Jonas is in Heaven and is no longer suffering and that you will get to see him again, even though you're in pain being separated right now. I don't know you personally, but I wish I were there to give you a hug and cry with you. Peace to you and your family during this rough time.
I know I have already left a comment, but when out little Landry died a dear friend sent this to us. I wasn't in the mind set to realize it goes to the music of "I am a child of God". I wish we would have used it at his funeral.
"CHILD OF GOD"
I am a child of God, And He has called me home. My earthly journey’s through but still, I do not walk alone. He leads me, guides me, walks beside me, helps me find the way. He welcomed me with open arms. I live with Him today.
I am a child of God, And I have gone ahead. My earthly life was brief but oh, Such peace and love you gave. You loved me, held me, stood beside me And though I cannot stay. You gave me much to help me and I live with Him today.
I am a child of God and I will wait for you. Celestial glory shall be ours, if you can but endure. I’ll lead you, guide you, walk beside you. Help you find the way. I’ll welcome you with open arms One bright Celestial day.
Donna Kulliard
We love you guys and you are in our prayers. You are amazing parents and jonas couldn't have asked for a better family.
love you all
The Ogdens
Whit and Lindsey,
We are so sorry for your loss. Jonas is such an incredible, pure boy. Words can't express the heartbreak. We love you.
The Endertons
I'm filled with such deep sorrow that, I'm sure, in no way matches yours. I'm sorry for the pain you have and that you will continue to go through. I will miss the wonderful personality that Jonas brought to your family and your beautiful expression if it. My prayers are with you. I love you!
Whit and Linds,
I can still remember crying at Jonas beautiful baby blessing, when Whit said and you will run to me! He will run, and is doing it right now! You both have been such amazing parents to him and have shown such strength and love. Thank you for sharing your sweet family with us and so many others. A true lesson of love and faith!
xoxo
erin
I have been following your blog for a while now. Jonas has truly touched my life. What an amazing little boy. My heart is breaking for your family. You are in our thoughts and prayers.
Our thoughts and prayers are with you!
I came across your blog recently, I actually went to Crestview with you and I was in the same mission as Whit.
I have been grateful for your strength as mother and for the reminder to cherish every day I have with my kids.
To repeat something that President Corbridge would say, look for a Chispa de Luz. Hopefully during this difficult time now you will be able to see many Chispas de Luz, your family has been a strength to me and many others.
We love you all! We are all going to miss Jonas! He is such a sweet boy and has such an amazing spirit. It carries on and what a blessing to know that we will see him again. I'm sure his spirit will always be with you! We love your sweet family and send prayers your way! Jonas will continue to be amazing! We think you are such strong parents and are constantly amazed by the care you give your sweet children! Our hearts are broken and we want you to know how much we love you and will miss our sweet Jonas! Love, Steph, Brad, Hy, Rob, Mike, and Em!
prayers...love...and more prayers are being sent your way....
be well,
Lisa :)
Dear Colemans,
We are so sorry! We have been following your blog for awhile, and look forward to each update. You have such beautiful and amazing children. Our hearts are hurting for you guys and pray you feel some peace and comfort during this hard time. Even though we have lost a child as well, I still feel a loss as to what to say. Mostly we want you to know we are so sorry, and that you will be in our thoughts and especially our prayers. Thank you for sharing Jonas' life with us! I fell in love with him through your posts, and just really admire your wonderful family. Whit, thanks again for taking such great care of Kynslee during her hospital stay. It still means so much to us.
Love,
Ben and Teea Lamb
Lindsey & Whit,
I am so terribly sorry to hear of your loss. Jonas will forever be in our hearts, such a precious child! I am a longtime reader, but have never commented. I just wanted you to know that I am praying for your family, and that my heart is aching for all of you.
~Sara Keenan
Lindsey & Whit,
I was so sorry to hear about Jonas. He will always be a "handprint on your heart." My thoughts and prayers are with you.
Love,
Catherine Field
Words can not express the sadness I feel right now. I know nothing like what you and your family are going thru. I am so sorry for your loss. Jonas was a very special spirit and I know he is going to continue to be with you in your heart until you can join him in heaven. Your family is in our prayers to find comfort and peace at this sad time.
Debbie Knobloch
I'm crying right along with you. May the Lord bless you with peace and comfort during this difficult time. My prayers are with you and your wonderful family!
Aapree
Coleman Family,
Words cannot express how sorry we are. We think of you all of the time and the amazing love you have shown throughout your blog for your little boy. Thank you for being an inspiration to all of us :) You have truly taught me as a new mom to love unconditionally and cherish every moment. What an amazing, strong family you have. Please know that we have prayed for you each night and will continue to do so. You have so many people thinking of you that I hope you feel the warmth you deserve.
What a choice little boy he is. Obviously he had work to do up there- and you will feel every little bit of it.
Stay strong - love you both!
Katie (Johnson) and Jeff Wood
Oh no. I'm so sorry for your loss. You are in my thoughts and prayers.
Whit and LInds, I'm so sorry to hear that Jonas has left you, but he couldn't be in a better place now. He was so lucky to have you guys as parents. I don't know better people than the two of you. We think of you always and you are in our prayers. Thanks for your amazing example.
Love always,
Keri and Taylor
We are so, so sorry to hear about Jonas. He has touched more lives than you will ever know. Sending you love, strength and prayers,
You have made so many happy memories in such a short time. May they help to comfort you and keep you company until he runs toward you with outstretched arms in the future...
Lindsey and Whit,
Words can not express the great sorrow I am feeling for you. I am grieving and praying for you all and sending all my love to you.
Erin Berreth (Mathie)
Our thoughts and prayers are going out to your sweet family. You two are so amazing. If there is anything you need please let me know.
Love,
Brian and Tiffany
Whit and LIndsey,
I am so sorry! I am amazed at how even though I never met Jonas, he truly touched my heart. And with that said, even though I've never met you, LIndsey, you have truly touched my heart as well. What a perfect mother you are for Jonas. And Whit, what a wonderful husband and father you are to your family. Thank you for letting me feel of your great spirit on CSU. What an amazing couple you two are, and such an example to so many, many people. I pray with all my heart you will be enveloped with peace and support at this time. No words can even begin to take away the hurt, but I hope that you are able to feel how loved your family is. Many thoughts, prayers and love coming your way...
Jillian (Olsen) Koon
I just read a lot of your old blogs and saw how perfectly beautiful Jonas is. How can anybody ever forget those big, beautiful eyes? I never knew him, and just recently came to this blog, and yet I am so sad that I will not see him getting older in the pictures. I am so sorry for your loss. Your family, and especially Jonas' sister, will be in my prayers and thoughts for a very long time.
I am so very sorry for your loss. Haveing 2 kids myself I can't imagine the right words to say at a time like this, but to tell you Heavenly Father must have missed him too much. What a sweet little boy. <3 Thank you so sharing his story.
I came over from the faucet photography blog. I saw your family pictures a while back and my heart went out to you then because I knew you were working so hard as parents. I give me condolences. God bless you and your family!
I'm so sorry to hear about the loss of your sweet beautiful son, my heart and prayers go out to you and your family. I hope the love that your family and friends have for you can help support you, and that the love of your Father in Heaven can help lift you in this difficult time.
I am so very sorry. Lindsey--we have never met, but I have loved reading your blog and then talking to Whit at work all about Jonas and how you are all doing. You and Whit are so amazing. I can't think of better parents. Whit--we miss you back at CSU and wish you were still there, but what a blessing you are to all the SMA families who you get to work with in the clinic. I'm sure it is so comforting to have someone there who knows exactly what they are feeling. My prayers and thoughts go to you both and Maggie.
I don't know you, but I saw your blog on anothers. I just want to tell you my families thoughts and prayers go out to yours.
Julianne Johnson
Holden, Ut.
Whit and Lindsey,
you are in our prayers and thoughts at this difficult time.
Jonas has touched so many lives. He was a little warrior, strong, intelligent, determinate and very very sweet.
His big blue eyes were more eloquent than a million words.
We love you,
The Trussell family
Linds and Whit-
My heart is so broken for you right now. Your Jonas was an amazing little guy and you two were incredible parents to him! I haved loved following your blog and have completly fallen in love with your little boy. My thoughts and prayers are with your whole family at this time. I'm sure you find comfort in knowing Families are Forever!
Love, Ashlee
Whit, Lindsey and Maggie,
I'm so terribly sorry for your loss . . . I'm so thankful that I got to meet you all this summer. Please know you are in my prayers
Thank you for keeping such a beautiful blog of a beautiful boy and family. Never met you, but have been following your story. What an inspiration you all are. Thoughts and prayers.
Dear Lindsey, Whit and Maggie,
I am a former Bennion teacher that only had the pleasure of knowing Lindsey for a brief time, though have followed your blog closely. The courage, strength, love, compassion, determination, and tenderness of your family and the amazing Jonas have touched me profoundly and you have been in my prayers so often. My heart breaks for you, but it is also at peace knowing that Jonas was surrounded by tremendous joy and love. Peace to you and your family- Jen Pettus
My condolences, Whit and Lindsey. I'm glad that you were able to have some years to make memories with Jonas. May those good times always stay clear in your mind and close to your heart.
I am so sorry for your loss. I came across your blog a month or so ago, shortly after my own daughter, Kennedy, was diagnosed with Type 1.
Kennedy's birthday is also December 2nd. She will be 1. We will light a special candle for your Jonas on that day.
You are in my thoughts and prayers.
Jennifer Swann
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