Saturday, November 20, 2010

Missing Jonas

I woke up today to Maggie crying, ready for a bottle and I thought to myself.. I wonder if Jonas is awake yet and how excited I am to go wake him up. Then I remembered that he wasn't there. I cried. Not 30 minutes later, I thought 'oh my gosh, it's past 8. I need to give Jonas his medicine.' I cried again. Throughout today and yesterday, many things like that keep happening. I miss him. We can't bring ourselves to move anything of his. His stroller stayed in the car all day while we went on errands. It feels good to cry, it makes me feel something because at times I am numb. My bubba is not by my side.

I did get to see his little body today and I felt complete again. I felt like I could laugh and sing and talk with out any hurt. He was an angel, so amazingly beautiful. I wanted to sleep with him there at the mortuary.
We lovingly picked out his casket and clothes to be buried in. That is all too surreal. I had no idea what it took to plan out a funeral/burial. Not too much fun, but I would do anything for Jonas.

Do you know how I've gotten through these two days? All of your comments. The morning after, the first thing I did was write the blog and then checked it every minute to read your love. I needed it. I needed every single one of you. Thank you, you helped me be strong.

84 comments:

Ashley Richards said...

Linds - you don't know me but I just love you! I have followed your blog for a while now. And my husband can't figure it out because I have cried every time I have looked at it. How I love sweet Jonas. I feel like he is mine too and I have lost something. How surreal it must be to not have him there, when you have cared for him day and night.
You and Whit are the most devoted parents I know, and darling Jonas was so blessed to land in your home.
I have cried all day today thinking about you guys and thinking about that beautiful boy. But my heart has cheered that he is no longer bound by a disease.
How I wish we could Skype to Heaven and just take a peek to see what our loved ones are up to.
Thanks for inspiring so many! You are loved by so many like me, who have not met you, but love you dearly!

Love you!
Ashley Richards

Emily said...

I have followed your blog over the past several months and absolutely fallen in love with Jonah! I didn't know it was possible to be so positively impacted by someeone I've never met. I am praying for comfort for your family at this sad time.

sarah jane. said...

linds and whit-
i am so sorry to hear about little jonas. my thoughts and prayers have been with you and your family these last few days. i am so glad that stu and i had the opportunity to be jonas's wish granters. it was such a fun experience for us and we wouldn't trade it for the world. he is such a sweet boy and i am so glad that he was able to enjoy his wish and that we were able to make that happen for him. i look at your blog all the time, it looks like you guys had a blast on your trip. i hope jonas had as much fun as stuart and i did being in charge of his wish. when i saw the picture of him in his buzz jammies we gave him it made me so happy. :) i am glad they fit!
if you guys want to come and raise jonas's star, we would LOVE that. i know you are super swamped with everything right now, but we are happy to schedule a star raising whenever works best for you, so take your time. we would love for his star to be there with the rest of them.
please let us know if there is anything we can do for you, we would be more than happy to do anything to help. we would love to come to the funeral services, and we have a little something for you guys so i will be in touch with you.
we love you guys!
sarah nilson

Heather & Spencer said...

Jonas, your love for him, those blue eyes, the way you discribe his spirt, my hope for Maggie, everything you write about- it inspires me and my family to be better- to show everyone around us more love and compassion and to do our very best to make the lives of others wonderful. You, as I am sure you are, should be so proud of how much this sweet little boy has done to help all of those who read about him, he has accomplished more in his short life than many of us can hope to in 100 years. Although you may not know me, I love you and your family. Thank you for everything and you will be continually in my prayers.

Ashley said...

Lindsey and Whit,
Our hearts are breaking for you. No parent should have to walk where you are right now. Hoping Jonas and our boys have met and are running around heaven together!
Love,
Ashley Manross

The Johnson's said...

Oh Linds, I am so sad for you and the whole family. My kids and I had a long talk and we imagined Jonas with our Father in Heaven, running and talking and telling him all about Disneyland. I watched their testimonies grow a little, knowing that Jonas is okay and can do all the things he wants to do. We cried together, we love Jonas and he has touched us so much, he is in our hearts forever. Elisabeth especially has been touched by him, she keeps remembering and is sad, and cries and says "Jonas is just so cute," thank you for giving her the gift of her little friend Jonas. Thank you for letting us all serve him the last few months, what a blessing. Hug my Arica for me, I know it is breaking her tender heart. And give Maggie a hug from us to. We love you and Whit, you are amazing parents,you did so much to make the best life for your little boy.
Love,
The Johnson's

dorneys said...

My heart breaks for you. You are simply amazing. You could not of said it better "crying makes me feel something because at times I feel numb" so so true. Crying is good. How I wish we could take some of that pain away. We have all been blessed by Jonas and his sweet spirit. We love him and miss him too. We pray you are comforted and your memories help get you through those long days. May you feel our heavenly fathers arms around you and feel his love. We love you!

Shawna Wilson said...

Lindsay... I don't know if you know me, but I was friends with Taylor in high school and I have seen you and Whit at Evergreen with your little Jonas in the summertime. I truly ache for your loss :( Words just can't describe how it feels to lose someone you love so dearly. Last November my Dad passed away from H1N1 and it was a hard, yet very humbling experience. I know the only thing that kept me and my family going was the prayers from others. I remember I honestly felt those prayers, especially at times I thought I would really lose it. So I want you to know there are so many people praying for you and your family and thinking of you often to help carry you through :) I think you are an amazing mother and I KNOW you will be so so so blessed for enduring all that you have!!

Lots of Love...
Shawna (Cox) Wilson

Brett and Lisa said...

Lindsey and Whit-
We have a lot of friends in common, and I also went to Olympus with Arica. I'm also Shawna Cox Wilson's sister (above). My husband also splashed at the pool with Jonas this summer! I have been following your blog ever since we passed out fliers for your family for the carnival in our YW group. I am so sorry. I am so sorry your heart has to hurt like this. It is amazing how it physically hurts at times. I cry just thinking about it. I wish I could just hug you and cry with you. We are praying for you and love you. Thank you for being such an amazing example of how to be a loving parents. Lots of prayers and love...

Lisa (Cox) Healey

Unknown said...

Jaime and I have been thinking about you guys nonstop. I've had two nightmares about Nora in the past two nights picturing when our day will come. Reading your words and seeing your strength is truly amazing to us. Although I only met Jonas a few times in California this is still rocking me to the core.

We are here and we want to help out when you are ready for us - whatever you need. Just drop me a line

TJ, Jaime, and Nora
http://www.Goodentree.com

Unknown said...

Lindsey,
You don't know me as well. I am also one that has been following your blog for months. I admire you in many ways. I think you are an amazing Mother. You have great faith in your Father In Heaven. You bit the bullet and got pregnant knowing the risks involved. what strength and courage. Then to find out your Sweet baby girl has the same genetic disorder. I am a Mother of a 3 year old as well who has health challenges as well. What have you used to hold on for strength? My little one has had stomach pain for 3 years. Many hours of holding, cuddling and crying. Those are some of the best times. That may not make since to a Mom with a healthy little one. Know that I am thinking of you and your family during this difficult time. May you feel the peace and love from your Father in Heaven. You have helped and inspired other Mothers through your trials. I will make sure to keep you in my prayers. Thanks,for your great strength and example to many others around you. Like my self who may not even know you! I would love to get to know you better. Have a great sabbath day!!!

Tami Harris

Cher said...

That was beautiful! I love your strength, it strengthens me! We have been thinking about your little family so much and we are praying that you will continue to feel peace and be comforted by all of those who love you near and far!

Cherisse

Bing Math said...

You don't know me, but I've been reading your blog for a while. My husband, James Binggeli, went to nursing school with Whit. I read your blog this morning and my heart just dropped. I am so sorry for the loss of your sweet little boy. Thank you for writing your blog. It help's me better appreciate each day and live it to the fullest with my own little girl.

We think of you often and know that your little boy is feeling better and is stronger than ever now!

Darren and Jody said...

Whit and Lindsey,

we were busy this last week and didn't read your blog until late last night. Our hearts are broken and I can't stop crying!! I wish we could do something to take your pain away. We love Jonas so so much and as you know we have felt a special connection with him and you from day 1. Every time I look at his picture I think of Karson they remind me so much of each other the way they looked and their personalities. We will be praying for you we love you . I know karson and Jonas knew each other in the pre existence and it comforts me to know Jonas will be waiting for Karson.

Love The Riggs

Jac said...

Although you don't know me, I feel as though I know you. I have followed your blog for a few months now and have been so touched by your sweet family. I suppose there are no perfect words to say at a time like this, but I just wanted you to know that I mourn with you and am praying for you. I pray the comfort that only the Lord can give will find you and will speak peace to your soul, not only today, but in the many days to come. You are loved.

Laura said...

Linds & Whit,

I am so so sorry. I am sorry you are going through this difficult time and I am even more sorry that I cannot physically be there for you. I wish I could just give you a great big hug and we can just cry together. You guys are always in my thoughts and prayers and even more so these last few days. I hope you know that I am always here for you, no matter what you need. I love you!!! I'm here for you always!!!!!!!!!!!!!

Lynden and Lyndsay said...

Whit and Lindsey-

It was truely heartbreaking to read your blog this morning and hear of the passing of your sweet little boy. You guys are such an inspiration of strength. Although his departure in this life is extremely difficult, it nice to know of the beautiful arrival he had when he was welcomed home. May you be blessed with comfort during this time.

With love,

Lynden and Lyndsay Wood.

Jessica said...

I have been thinking of you all and praying for you everyday. I am so sorry that you have to go through such terrible grief. May God wrap his arms around you and comfort you during this time.

P.S. Jonas's obituary below is simply beautiful.

Cardalls said...

Merri Coleman was my first Young Women's president as Beehive. I love her and the Coleman's. I am sure Whit is too young to remember me (cheryl bevan). Your sweet boy is beautiful and I am so very sorry for your tremendous loss. I know the Savior comforts us beyond what we think possible in terrible times of grief. You two are amazing and must be such valiant spirits to have been blessed with such beautiful and special children. May God's peace, comfort and love be with you at this difficult time!

Enjoying Our Journey said...
This comment has been removed by the author.
Enjoying Our Journey said...

Dear Coleman Family,
As I have been following your blog, I have been deeply moved and inspired by the beautiful love in your home. Jonas, though I never met him, touched my heart in ways that are not easy to describe in words. What a miraculous little boy. You can see such light in his big blue eyes, and it warms the soul. I pray that you all will have much comfort and peace. I am so deeply sorry for the loss you must be feeling. You are all such an inspiration to so many. And I thank you for sharing Jonas with us all through your blog. You will continually be in my prayers.

Love,
Laura VanderToolen

Ashlee Kent said...

Linds, You are truly amazing!

Devon said...

We have been, and will continue to do so, praying for your peace. I wish there was more that I could do, but I know God is holding you, and I suppose one can't do better than that anyway.

I am glad you liked my little tribute to Jonas. I listened to the song over and over again to make sure I got all the words right and cried for you and Whit and Jonas as I was doing so. You are close to our hearts. I want to echo the above poster in thanking you so much for sharing Jonas with us. He is an amazing boy with an amazing sister and amazing parents.

Trav and Lizzie said...

You guys are amazing and inspiring. I really loved this post, your honesty has always been something admire and it's neat to know that thoughts and prayers can change the world, even if just a little. Know you have mine, too.

Groves said...

Everything in me is saying, "No, no, no, no...!" I was too ill to be at the computer this week and did not check in with you.

Now I cannot believe that the sun bothered to keep shining after November 18th.

Oh Lindsey, Whit, and Maggie!

And Jonas...! Jonas, I feel so selfish right now, because all I want is for you to come back. I want you back. I want you back. I want you back. I want you back in the forts with your Daddy. I want you back on the blanket with Maggie. I want you back in your Mom's loving, aching, arms. How can you not be there, in the Coleman house?

I want to be strong and brave, but all I can do is cry and hate death and want him there with you. Of course, I know that everyone will say that he is free from suffering now - no one knows that better than you - but it does not change his being gone, being taken. And that is what is too much for any person to bear.

My husband found me sobbing in the bedroom today, and I could hardly say those words, "Jonas died." I can't believe it. I didn't want to say it.

I know I should be able to believe it; I know what SMA does, what a terrible, horrible disease you have all been fighting. I know what you are still fighting, with Maggie.

If I were well enough, I would be on the first plane out. I want so much to be at the service, honoring his life. I want to hug you and look into your eyes and thank you from the deepest parts of my soul. If you hadn't fought day and night through these years, I never would have known Jonas at all. None of us would have.

And he is one of the most unforgettable children ever. He truly is proof that God uses the weak things of this world to shame the strong. Jonas never got to speak a word, but who can possibly put a price on the impact he has made and still makes?

When JFK was assassinated, his brother Robert, overcome with grief, could not bear to speak in public for a long time. When RFK finally broke his silence, he quoted Romeo and Juliet: "And when he shall die, take him and cut him up in little stars, and he will make the face of heaven so fine that all the world will fall in love with night and pay no worship to the garish sun."

Something in that made me think of Jonas, because he truly has made the face of Heaven so fine that I cannot bear to see the sun shining now that he is gone.

To say that my heart aches with you doesn't begin to cover it. And there are no words for what you are suffering. No words at all.

Crying in Missouri, much love,

Cathy

Lucky to be the mom said...

Such a huge hole you little guy has left - a void that will ever be there.
A wise person told us that our intense grief was equal to our intense love for Amelia, the daughter we buried. That tiny casket, that tiny, lifeless body that I wanted to hold on to forever.
There's no 'rule' about putting his things away - 15 years later Amelia's things are still close by to be looked at, held, cherished material mementos of a beloved child.
Surely he is still near Maggie :)
Please accept our condolences.
Love,
The Ferrins

Barb said...

You are amazing. I am so glad that you could feel some peace when you saw Jonas again on this earth. I know that you will always feel his spirit near you. You are and will always be his mother and Whit his incredible father. You have many people mourning with you.

Staci said...

Lindsey and Whit- Thank you for giving me the pleasure of knowing Jonas. He is a beautiful boy from amazing parents. I am sorry that this moment came so soon. I was looking at the blog Thursday night and telling a friend all about Jonas and your family, then next thing I knew was that Jonas had passed away that same night. His obituary was beautiful and we are all better for knowing him (even those of us who knew him for a short time. I won't try to tell you how you will feel from this moment forward, just know that however you feel, whatever you do is right. There is no wrong or right way to go on from here. Keep posting if it helps, we are all here to listen.

Staci (angel Bridger's mom)

Ken and Andrea. said...

Oh, Linsdey. I am sobbing with you. I just love you so very much. I know that Jonas is being well cared for with Heavenly Father and all of the people who love him in the spirit world. But, I can only just imagine and cry to think of how you feel right now. I am so sorry. You will never stop loving your son, that I know. All of my prayers are with you today and forever.

Andrea

Kas said...

You do not know me, but I am a friend of a friend of a friend. I have a disabled brother who requires 24 hour care and I know what its like to have such a sweet spirit in your home. At some point, they become your life and you lose yourself in them and their care, and when they are gone, you feel like you've lost a part of yourself as well. For me, it is my brother, but I now have 2 children of my own close to yours in age, and I cannot fathom losing either of them. I know you have a long road ahead of you with both your grief and caring for your beautiful little girl. I know I cannot say anything that will take away the pain, but I will keep you in my prayers and imagine the day that you will get to hold your little children in their perfect bodies! That will be a glorious day! And if you ever need anything, just know that a perfect stranger is here and willing :)

love,
Kas

Anonymous said...

Lindsey,
You are in my thoughts every minute of the day. My prayers are filled with pleas of comfort and peace within your soul for your family, but most especially for you and Whit. I love you. And I'll be here to remind you of that whenever and wherever....not just now, but those days down the road when life seems to continue for everyone else and you are missing him. I truly love you and care deeply about your troubled heart. Your little Jonas changed my life forever. His ability to overcome his earthly challenges affected my soul.

I remember the day in Laura's room that you told us you were expecting Jonas. That was a moment of pure happiness. I remember the excitement on our New York trip when you began to "show". You, Jonas, and I climbed mountains at Mill Hollow several times that summer. Laura and I literally coated ourselves with sanitizer to come see him in the hospital. I got to hold him the day after his birth and that was precious. We were able to be with him duringa few of his milestone parties and at other life events. I feel that I was able to be a part of his amazing life and it's an honor. He has become a piece of my heart.

{owens} said...

we're still thinking of you every minute. we're so sorry. cameron's brother passed away last year and i remember how comforted the family was to go to the mortuary and be with his body. how comforting and peaceful that time was. i'm so glad you got to be with him.. my mother in law always said that to get through those days and nights she knew that someone was carrying her, because the grief is too deep. we hope you're feeling those prayers and the lord's arms carrying you at this time. if you need anything, don't hesitate to ask, there are so many around you that are more than willing to help. we love you guys.

ash and cam

Julia M. said...

I first saw your story this summer on KSL, and when I saw the obituary today in the paper, I just had to find your blog again and tell you that my heart aches for you. Jonas is a beautiful boy, and he's lucky to have had you as his mother. I hope you feel peace and comfort at this hard time.

Leslie Garbanati said...

Dear Coleman Family...You don't know me, and to be honest I am not sure how I stumbled onto your blog...I think through another SMA family that I know. Your sweet Jonas is beautiful and he is now perfect. I have an angel waiting for me in Heaven, too. I knew her only six days, but she is in my heart FOREVER. I found something on someone else's blog not long after my Mayzi went back to heaven. It touched my heart and I thought I would share it with you. I am so sure that these little ones are near. I also am sure everyday I live and breath is one day closer to eternity. My prayers are with you....
I am a child of God and He has called me home.
My earthly journey's through but still, I do not walk alone.
He leads me, guides me, walks beside me, helps me find the way.
He welcomed me with open arms. I live with Him today.

I am a child of God and I have gone ahead.
My earthly life was brief but oh, such peace and love you gave.
You loved me, held me, stood beside me and though I cannot stay.
You gave me much to help me and I live with Him today.

I am a child of God and I will wait for you.
Celestial glory shall be ours, if you can but endure.
I'll lead you, guide you, walk beside you.
Help you find the way.
I'll welcome you with open arms
One bright Celestial day.
(written by Donna Kulliard)

Allison and Josh said...

Lindsey, I don't know if you remember me from the Evergreen and Olympus days but I have been following your blog for a while now and am so sorry to hear about your sweet Jonas. My heart is aching for you and your family. You have been such an inspiration to me ever since I found your blog several months ago. You are such an example to everyone that knows you. Your words and Jonas' story have touched so many lives. I love how honest you've been about your feelings going through all of this. You are a beautiful and strong woman and I look up to you so much. My thoughts and prayers are with you and your family.

Lots of Love,
Allison (Bringhurst) Meadows

Keri Cannon said...

Linds and Whit, I cry everytime I look at your blog and just ache for the missing piece in your family right now. Jonas has made such an impact on countless people and your strength has made such an impact on every person that reads your blog and knows you. You two are my heros and I hope to one day have the strength and devotion that you guys have. Jonas will always hold such a special place in my heart! He is one special little boy. You will continue to be in our prayers. Love you guys!

Angelique said...

Wow. I can only imagine what you and Whit are going through right now. I am not sure if Whit mentioned, but I used to work with him and I have a son that was born 4 days before Jonas. It is sad that they never met in this life. I am sure they would have been friends. My heart goes out to Maggie too for I too had a daughter just 4 days before she was born. My love and prayers go out to you and your family in this very sad and trying time. I know that the Lord will be there to comfort you.

leslie said...

You don't know me but I am a friend of your mom's. I am heartbroken for you and your family. I have admired your strength and courage. My prayers and thoughts are with you and from everyone at Black Goose.

ScottNLili said...

Coleman Family,
I was reading the paper today and saw Jonas in the obituaries, and my heart sank. I have followed your blog for a while, I found it though Lacey, Jaxsons mommy. Anyways, I just couldnt get over how amazing your little guy was. I enjoyed your blog entries, and thought you were so awesome for being such a wonderful mother to him. The strength you have shown is inspiring and I hope you know that you have touched a lot of people by sharing your life with us. You are in our prayers.
-Lili Earl
South Jordan Utah

The Roe Family said...

Life is so not fair. I'm so sorry you have to go through this. Lindsay you are so inspiring. I hope you feel Heavenly Fathers arms around you.
Love,
Michelle(Richards)Roe

beccab said...

I know you do not know me personally. I saw your KSL story and began reading your blog. Please know what an impact your sweet family has had on my own. You have been in my thoughts and prayers. I have cried much for Jonas. What a sweet special spirit, thank you for sharing a part of him. You are an amazing mother, I am better because of your story. And your strength to share it so tenderly. I pray for you during this difficult time. Much love to your family.

Nick, Chris, Livvy, Calli and Keira said...

Sweet Lindsey...Oh how our hearts go out to you and Whit. Dear little Jonas will truly be missed at family dinners and gatherings. His big blue eyes will be missed most of all. We are looking forward to our days at disneyland and attributing many times to memories shared about Jonas. The girls keep talking about him and how much he loved it and are so excited. We wish so much that we could be there with you but have felt in our hearts that this is where Jonas would want us to be. We love you guys with all our hearts and can't wait to share our experiences with you when we get back. Thanks for being the inspirations you are.

Miss Kitty said...

Thinking of you tonight and your beautiful angel... and remembering when I met Jonas. That night I posted on my blog about meeting him. The title of the post: Today I Met An Angel. Jonas touched us with the touch of heaven, an angel that inspired within us everything good. Our hearts are with you. Love, the Deems

McCall said...

I am sure it will take a long time for you to get used to the change of not having him at your side day by day. But he is still with you. Visit the temple often and you will feel him closer than ever.

Victoria Strong said...

We are thinking of you nonstop. Aching knowing you are. Wishing this were not so. Sending so much love your way.

Dagmar said...

This is my first time here and I just want to say how sorry I am you little son went to heaven. Gosh, this must be SO hard! I can't imagine being without my sweet L.

Please hang in there and know that a lot of people are thinking of you during this hard time.

Big hug,
Dagmar
Dagmar's momsense

Unknown said...

Hello,

I'm not a follower of your blog nor have I set foot in here before tonight/today. I actually stumbled upon your blog while reading an Etsy lady I've recently ordered goods from.

Although we don't know each other, I want to express my deepest condolences. It breaks my heart to hear about your story.

I hope I'm not being too bold. Please remember all the good times whenever you're feeling weak. It's okay to cry. Never hold yourself back if you don't want to. Let yourself cry into a silly mess and when you're done, pick yourself back up. You have a gorgeous daughter and I'm sure Jonas wants you strong for his sister, father, and more importantly: his loving mother.

Be strong. When you're done with the tears, please lift your chin up and face the world.

You will get through this.

melyssa smith said...

Linds- We were in Kappa together up at the U. You are an AMAZING Mom!! How you have shown us a sweet example of Christ-like love! My little family is praying for yours. Best Wishes!!

Boston K Jensen said...

Dear Coleman's: I believe that not only is there a special place for these children but also their families.We love you, Jonas loves you, and Heavenly Father loves you for all you have done. He trusted you with this and you did all you could. Can you imagine what Jonas will say to you someday? The gratitude in his heart for your love and care.....
God bless you as you go through this next journey and grieve and rejoice.
Bostonkjensen.blogspot.com

Amanda said...

I've been following your blog for a while, your strength and endurance inspires me! I can't imagine how difficult this must be for you! Jonas must be so happy right now, i'm sure he feels a level of peace and comfort that he has never known! I'm sure he's looking forward to seeing you guys, and sharing everything with you. My prayers are with you and your family.

Sarah said...

I didn't realize that my little boy is just a bit older than Jonas. I always thought Jonas was older because of the wise-ness in his eyes. Those eyes showed a soul that was brilliant and deep.

I can imagine him rejoicing in heaven and his heart hurting because he misses his mom. I am sure he doesn't want you to hurt.

You are still in my prayers and thoughts. You can do this. You are stronger than you think!

I've never met you, but I love you to pieces and pray for you! What an amazing family you & Whit have. What an inspiration you are. Thank you for sharing your life with us so that we can remember the things that are truly important.

Sarah

RMmom said...

I am very sorry for your loss. Your son is beautiful. Kate St Clair is a friend of mine from March of Dimes and she shared your story today. I am truly honored to have read about your amazing son. May he rest in peace.

Deciduous Heather said...

Dear Coleman family, I just stumbled onto your blog from MckMama's message board. I just spent the last hour reading about and looking at pictures of your sweet family. Jonas is beautiful, his eyes are so expressive, you are right. I loved each and every pic you posted of him and his sister. And the ones of the fort with his Daddy just about did me in.

I am a last year pharmacy student that spent last month at a Children's hospital on the Pulmonology unit. I learned a great deal about SMA.

Jonas is no longer bound by his disease. He is perfect in heaven, and I can tell by your blog, your words, your love that is here...that he lived a wonderful life and was so loved by his parents. I will pray for comfort and grace during this time for your family, take your time....Know that many people are holding you all up in prayer. I will be thinking of you all.

Heather in OH
www.deciduousheather.blogspot.com

Missy said...

I am new to your blog and I have no idea what journey you have been on, but I can see in just a few moments on your blog that the journey has been full of love. I lost my precious little 4 year old boy 2 months ago and my greatest fear for the first few weeks was waking up in the morning and having to remember that he was gone...reliving that realization is like losing him all over again. The pain is unbelievable.

No words can ease your heart. Please know that you are in the hearts and prayers of so many people.

What a precious little boy.

Missy

K Richards said...

Love you so much and we have been CELEBRATING Jonas's life at our home, all wonderful memories that will never be forgotten. Love, Kim Randy Kate and Ian

Lavigne Family said...

My siblings and I are so sorry for your loss. Jonas has touched so many of lives during his short time here on earth. We are sure you know of the endless love and support you have surrounding you.

Love,
The Herrscher Family

Kristen said...

All of you continue to be in my thoughts and prayers. Tomorrow when you have your celebration try to remind yourself that absolutely everybody there is there because they love you and they love Jonas. Don't be afraid to just be yourself around all of them. Their love will hold you up even when you feel like you are going to fall.

Sending love, strength and prayers,

Kristen

Cara and Steve said...

Lindsey and Whit,

I often check your blog and was saddened to hear of Jonas's passing. I'm so sorry for your loss and heartache at this time. Your blog is such a beautiful tribute to his life here on earth and I am so grateful that you have taken the time to reflect and write about his journey. I was so happy to see that you were able to make one last trip to Disneyland with Jonas... it is truly a magical place and I can see why he loves it so much! You and Whit are such strong and corageous parents who show so much love for your children. Thank you for sharing the story of your family with so many. Our prayers and thoughts have been, and will continue to be, with you and your family. Love,

Cara Lyon

The Rawlins' Fam said...

Linds & Whit-

When I heard about Jonas I couldn't keep back the tears which I'm sure was the same for everyone else. And like you said, why keep them back. It feels good to cry! I wish I knew the right words to say to bring you the most comfort. I haven't been able to hold myself together the past few days and I only met Jonas a few times. But his eyes just hit me like a windstorm. They truly were so powerful. Pure kindness and magic behind them. I can only imagine the emotions you and your family are going through right now. One thing I must say is as I have watched you and Whit raise Jonas and how you are doing the same with Maggie it is so inspiring. You are full of love, devotion, happiness, making the most of everyone moment, and overwhelming gratitude. From you I have learned a lot about parenting. We will be at the viewing tonight and I knew I may not get a lot of words out through the tears so I needed to tell you guys here how much we love you both!!! Thank you for always sharing your journey and giving Jonas such an incredible life here on earth. It brings a smile to my face every time I remember that he experienced Disney again so recently. Jonas is an incredible boy with some very important things to accomplish on the other side, I'm sure of. Love you both.

Melanie

Deb Chitwood said...

Dear Lindsey and Whit,

I’m crying with you. Jonas was truly beautiful, and you’re such an inspiration of unwavering devotion. You’re in my thoughts and prayers every day.

Lots of love and ((((hugs)))),
Deb @ RaisingFigureSkaters.com

Ali said...

I'm thinking about Jonas right now. Just wanted you to know. One happy memory that comes to mind is when Whit and Jonas played in the fort that Whit made. I loved that post.

Unknown said...

Lindsey and Whit, I felt like I knew your family a little when I wrote about you before the fund-raiser. My girls have been praying for you. I am so sorry for your loss.
I wish you peace.
Lois

Whitney said...

I don't have any eloquent words to say but I just want you to know I haven't gone more than a few minutes without thinking about all of you. I wish I could be there to support you tonight and tomorrow in person, but know I will be thinking about you constantly! I think the world of you both and hope these next days are full of comfort, love and peace.

Whitney said...

I don't have any eloquent words to say but I just want you to know I haven't gone more than a few minutes without thinking about all of you. I wish I could be there to support you tonight and tomorrow in person, but know I will be thinking about you constantly! I think the world of you both and hope these next days are full of comfort, love and peace.

Teresa McCormack Flegal said...

I can't imagine what you must be feeling and going through. You have been such amazing parents, wanting Jonas to experience all that he could while here. You'll always have the memories and the longing, but you also have the knowledge of where he is and who he is with. May your heart be comforted and your memories of him long and sweet. Our love to you and Whit.. Teresa & Doug Flegal

Holly said...

I was lucky enough to see you tonight at the viewing of sweet Jonas. I am amazed how strong your family is. Not to say that you haven't had your moments of breaking down, but I could tell you are so full of hope and love. I felt a little silly for wanting to cry in front of you, for a boy I never met in person, when you show such strength and vitality. I know it's not truly silly. Tears never are. I want you to know how deeply I feel for your family right now. My prayers will continue to head your way. Honestly, I'm sure Jonas is doing the same.

ashli said...

you don't know me, i have watched silently your journey for a while now. i met you at evergreen, saw your cute family at mcdonalds, and cheered my good friend kristen on while she helped plan the magic.
it has been a true blessing in my life to watch your family. you are so strong. you are so full of love. that sweet sweet angel of yours is going to help and bless you as you remember him and hold on to his memory.
always know that there is so much love out in this world for you and prayers galore.
thank you for your example, love, and strength. truly inspiring!

ashli

Michelle Arnett said...

Bless your sweet heart. Jonas is a sweet beautiful boy. I am photographing for you in lieu of Jen today, I am excited to meet you. I belong to an angel blog for those of us who have lost babes. There are several mothers on there who have lost their babes to SMA. If you want to be part, and trust me you do, because it's a wonderful group of bereaved parents, give me a holler and I will get you the administrators email.
Love,
Michelle
James' Mom
michelle.kra@gmail.com
If you need anything, please let me know. Even if it is just talking to someone who knows how it feels to lose a child.
Kisses

Gygi Family said...

Linsey, Whit, and Maggie. We love You. We have been constantly thinking of you! We will miss Jonas terribly. We think you are just wonderful and very strong. You are an inspiration to us and we have been so blessed to have Jonas in our lives. WE LOVE YOU LOTS! We send LOTS of hugs and kisses!!!!! Love, Jess, Ryan, Elsie, Mary, and Wes.

Teea Lamb said...

Still thinking of you and praying for you. We hope everything went well today and you were able to feel your sweet boy close by.
All our love,
The Lambs

ErBerr said...

Lindsey and Whit,
I have been thinking about you and praying for you constantly over the past week. Dad and I shared many tears as we talked about you and your family on Sunday and what a blessing you are. I wish I could have been there for you yesterday but I was with you in thoughts and prayers. I love you all and continue to pray and think about you all.
Erin Berreth (Mathie)

Reagan Leigh said...

My heart goes out to you. Jonas is such a gorgeous little boy. My daughter does not have SMA...she has mitochondrial disorder...but I've been following Gwendolyn Strong for quite sometime and I've learned a lot about SMA along the way. SMA and mito are both horrible diseases that take our children from us way too soon. I just wanted you to know that I'm thinking and praying for you today.

Emily, Steve, Anthony and Alexander said...

Lindsey and Whit,
Thank you so much for sharing your family sotry with us and for being an example of faith. Knowing about Jonas and Maggie and being able to read your blog about them has greatly strengthened me and given me hope in this life.
I pray for you and your family and hope that the Lord will comfort you always. Know that Jonas' body has been made perfect! What a sweet reunion it will be many years from now when you get to see him walk and talk and do the things that he has not been able to do here on this earth.
Thank you for your faith!
Emily Curtis Carlson

SanDee said...

Dear Lindsey and Whit-
I do not know you, but I found your blog while reading the Lunts' blog about their daughter, Lucy. I am in tears after reading the beautiful tribute to Jonas and your feelings of missing him in your daily life. As a mother, my heart is breaking for you. I said a special prayer for you and your family tonight as I kissed my two children goodnight in their beds. I am so very sorry for your loss. May God bless and keep each one of you close to Him as you remember your beautiful blue-eyed boy. The prayers of so many are with you-people you know, and people you don't know, like me. Stay strong.

The Johnson Crew said...

Our hearts are with you this Thanksgiving day!

Lots of love and prayers coming your way.
We would like to send you a little something. When you get time could you send me your address to gm-tinker@hotmail.com.
Love the Johnson's

Ashley Nicole Jones said...

Oh Lord - please be with this family during the grief, sorrow and pain. Please give them peace and comfort that can only come from You. I also ask that You would give them strength to go forward and continue to be amazing parents for their little girl who will also need them.

I commented before, but I just want to let you know that I am constantly thinking of you all and have everyone who reads my blog lifting your family up. You are being surrounded with love and prayers. I know you have a lot of support by reading all of the comments, but as a fellow SMA mommy, I am here if you need to yell, cry, or vent or whatever. Peace to you and your family. Love from the Jones' Family.

Kim said...

You do not know me, but I have read your blog. I have been constantly praying for you and your family. It is clear that your sweet Jonas made a huge difference in his short time here on earth. Know that many are praying for you and thinking of you today. May God bless you and give you strength for the rest of this lifetime and fill you with anticipation and joy of looking forward to the day when you will see your sweet boy again. God Bless You.

Amy said...

You are a wonderful example of everything a mother should be! We came to the carnival for your cute family and were touched not only by you, but also by all of the support from the community. May you continue to feel the love from everyone around you!

Groves said...

Every day I am missing Jonas - and every day, you are missing him *most of all.*

He is remembered here and so are you - always.

With love,

Cathy in Missouri

Melinda said...

I don't know you, but I came across your blog and wanted to tell you that I am so sorry for your loss. You and your family will be in my prayers.

steph said...

Colemans! We love you so much and want you to know that we CELEBRATED JONAS! Shout outs were given on Casey Jr., Peter Pan, Dumbo, and Alice! We love him so much and he has only brought happiness to all of us. I'm sure he is as happy as he was as Disneyland. It's not easy for any of us and he will always be remembered. Your sweet family has been in our prayers and will continue to be! We love you!!! xoxoxo, Steph, Brad, Hy, Rob, Michael, and Em

Hallie said...

I have been a longtime reader of Bill and Victoria Strong's blog and just saw their post about Jonas.

I wish I had the words to tell you how sorry I am for your loss. Your family is in my thoughts and prayers.

Jared & Shannon said...

You do not know me but I have been following your blog ever since I saw your story on KSL. I hope you don't mind me commenting but I have been so touched and humbled by your story and my heart aches for your loss. I had not looked at your blog for a couple weeks and when I saw that Jonas had passed I was stunned. I couldn't stop crying. What an amazing little guy he is, he has touched so many lives, and I won't forget those beautiful big blue eyes. I will be praying for you and your family and hope that you will have the comfort that you need to get through this difficult time.

just waite said...

You don't me I found out about your blog through the photographers blog that took the pictures of your cute little family. I am also going through a loss. I lost my daughter she was a full term baby that was a still born I know that feeling of planning a funeral/burial. Picking out my little girls casket was one of the hardest things I have ever done. I'm so sorry for your loss. Your family is in our thoughts and in our prayers.

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